Blood Cancers & Disorders Support Group

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Comment

I might add that some types of MDS are low risk & those patients are a...

https://connect.mayoclinic.org/comment/1313326/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 26 12:02pm

Comment

Hi I’ve been recently diagnosed with high risk MDS. I have monosomes with 15,18,20,22. Missing chromosomes...

https://connect.mayoclinic.org/comment/1312767/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 25 5:05pm

Comment

Hi, @statmatics and husband! You are a united team in your wife’s diagnosis of MDS. I...

https://connect.mayoclinic.org/comment/1327606/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 15 9:49am

Comment

Lori, Thank you for your input. As many have said on the site, you are amazing....

https://connect.mayoclinic.org/comment/1301976/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11 4:01pm

Comment

Have MDS … have done bone marrow biopsy with a lidocaine injection … a little uncomfortable...

https://connect.mayoclinic.org/comment/1149990/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

Comment

Hello @jeremy88. I would like to invite @chattykathy to this discussion as she has used neupogen...

https://connect.mayoclinic.org/comment/235266/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2018

Comment

Hi Steve, it’s not surprising your mom’s red blood counts continue to drop if her bone...

https://connect.mayoclinic.org/comment/1173360/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

Comment

Hello I was diagnosed with MDS today after a week in hospital with a hemoglobin count...

https://connect.mayoclinic.org/comment/1172503/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Comment

Hi Cindy, not every comment here will be relevant to your husband’s case. But those of...

https://connect.mayoclinic.org/comment/1284004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17 12:12pm

Comment

I have low risk MDS and have been receiving treatments of Reblozyl These treatments have been...

https://connect.mayoclinic.org/comment/1080366/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024