Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

446 total results

Comment

Thank you for your post I was wondering if you felt better on the Jakafi? And...

https://connect.mayoclinic.org/comment/1350344/

Discussion: Will my Hydroxyurea dose ever be reduced? Does this happen with ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Comment

Like you, I was initially diagnosed with PV about 6 years ago. My Doctor, at the...

https://connect.mayoclinic.org/comment/1262661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2025

Comment

Leaving it in the Lord's hands is the best thing any of us can do. I...

https://connect.mayoclinic.org/comment/1006798/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2024

Comment

@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...

https://connect.mayoclinic.org/comment/1432393/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

I originally had a platelet count of 555 that started my journey. I was diagnosed with...

https://connect.mayoclinic.org/comment/780489/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Comment

I have been on Jakafi for two years for a different condition: GVHD. I have responded...

https://connect.mayoclinic.org/comment/908453/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Comment

I started on HU after turning 60. My Hct shots up fast if eating iron rich...

https://connect.mayoclinic.org/comment/1224445/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2025

Comment

hello Bijou I did start Jakafi a year ago. I did not take the full dose....

https://connect.mayoclinic.org/comment/1099097/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost...

https://connect.mayoclinic.org/comment/794995/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Comment

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023