Blood Cancers & Disorders Support Group

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Comment

My sister has CTCL and I’m looking for ways to help her. She has been having...

https://connect.mayoclinic.org/comment/1340602/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2025

Comment

I’m a 71 yo female in good health. My count was initially in the 900s by...

https://connect.mayoclinic.org/comment/929492/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

Thanks so much for putting some common sense to our diagnosis. Sometimes when I read other...

https://connect.mayoclinic.org/comment/838615/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

Comment

Re itchy bumps: ET jacks up histamine levels. I have more skin irritation, asthma, and rosacea...

https://connect.mayoclinic.org/comment/928129/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Comment

I have had extreme itching for quite awhile, my doctor recommended applying coconut oil once or...

https://connect.mayoclinic.org/comment/1253703/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Mar 9, 2025

Comment

My HES affected my heart. Nucala has been approved by the FDA to treat HES and...

https://connect.mayoclinic.org/comment/939455/

Discussion: Hypereosinophilic syndrome (HES)

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

Comment

Could it be related to anything you might be eating which could be interacting with your...

https://connect.mayoclinic.org/comment/906136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

Dear Lori, It was mistakenly mentioned by me as CML .In fact my sister has CMML....

https://connect.mayoclinic.org/comment/1367376/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Comment

I just did a bone marrow biopsy. They sent my results to two of the top...

https://connect.mayoclinic.org/comment/1336532/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

Comment

@nancyra I have had ET x 17 yrs. My dad also had it, so I knew...

https://connect.mayoclinic.org/comment/1429862/

Discussion: Hydroxyurea vs Agrilyn: Anyone switched from HU to Agrilyn?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025