Blood Cancers & Disorders Support Group

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Comment

@nypara66 Most of the time persons with blood disorders such as polycythemia or hemochromatosis are disqualified...

https://connect.mayoclinic.org/comment/851485/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

I joined the JAK2 club in 2018. I have Polycythemia Vera which is a MPN sister...

https://connect.mayoclinic.org/comment/1184707/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Comment

I was exposed to Agent Orange in 1968-69, at the height of the Vietnam War. I...

https://connect.mayoclinic.org/comment/1434552/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Comment

@kat260 I’m 79 got my final diagnosis last week. It is Polycythemia Vera(MPN NOS-with Neutrophilic Leukocytosis)...

https://connect.mayoclinic.org/comment/1524111/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 3:19pm

Comment

I was diagnosed with polycythemia vera 10 years ago, at the beginning I was getting a...

https://connect.mayoclinic.org/comment/1010255/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

Welcome to Mayo Connect, @lisbob40 Having blood a condition like polycythemia vera (PV) can be confusing....

https://connect.mayoclinic.org/comment/1416057/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Comment

I started on seven days a week and felt like crap. Hair loss, and super sensitive...

https://connect.mayoclinic.org/comment/1204224/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

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