Blood Cancers & Disorders Support Group

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Comment

Hi everyone, hope all is well. My name is Claire and I also have essential thrombocythemia...

https://connect.mayoclinic.org/comment/194319/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Comment

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Comment

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3 9:38pm

Comment

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started...

https://connect.mayoclinic.org/comment/787555/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

Comment

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Comment

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Comment

That’s so interesting you weren’t getting a CBC draw in all that time. I had always...

https://connect.mayoclinic.org/comment/1323595/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 9 10:47am

Comment

I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...

https://connect.mayoclinic.org/comment/1140842/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2024

Comment

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

Comment

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024