Blood Cancers & Disorders Support Group

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Comment

Hello @apr931, Welcome to Connect. You may notice that I moved your message to combine it...

https://connect.mayoclinic.org/comment/194267/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Comment

Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...

https://connect.mayoclinic.org/comment/1062089/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Comment

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...

https://connect.mayoclinic.org/comment/1048208/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Comment

Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...

https://connect.mayoclinic.org/comment/919583/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Hi, We recently found out that my 16 yo daughter has JAK2, very rare and her...

https://connect.mayoclinic.org/comment/799486/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

Comment

The JAK2 mutation is common among multiple blood cancers. You need to get a molecular panel...

https://connect.mayoclinic.org/comment/298976/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

Comment

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Comment

From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...

https://connect.mayoclinic.org/comment/870089/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

After two weeks on one pill of HU my eGFR went from 82 to 52. Has...

https://connect.mayoclinic.org/comment/826035/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Hello , I have been treated for PV/ JAK2 for four years . I was on...

https://connect.mayoclinic.org/comment/773685/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022