Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,561 total results

Comment

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

Comment

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

Comment

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...

https://connect.mayoclinic.org/comment/1203402/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

Comment

@janemc I looked back at my assessment as of April 27th, myeloproliferative disease with thrombocytosis Jak2...

https://connect.mayoclinic.org/comment/1586307/

Discussion: Effectiveness of HU on ET w/MPL?

Support Group: Blood Cancers & Disorders

Posted: May 29 5:54pm

Comment

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Comment

@ina2022 My hematologist told me I had a high platelets count (675) in Nov 2024 with...

https://connect.mayoclinic.org/comment/1558250/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 24 8:10am

Comment

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...

https://connect.mayoclinic.org/comment/967362/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

Comment

According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...

https://connect.mayoclinic.org/comment/894419/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

1
…
19
20
21
22
23
…
145