Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with high platelets after a blood test in January 2025. My previous July...

https://connect.mayoclinic.org/comment/1348757/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 15 11:15am

Comment

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 6:50pm

Comment

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Comment

Have you been tested for gout? My JAK2 was determined after I complained of bad knee...

https://connect.mayoclinic.org/comment/1348052/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 12:04pm

Comment

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Comment

Hi Leonard I also tested for a mutation it’s a monoclonal protein spike. So with that...

https://connect.mayoclinic.org/comment/974150/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....

https://connect.mayoclinic.org/comment/1161210/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

Comment

May I ask... what was everyone's Erythropoietin results? Mine was 5.. it's not "low" but more...

https://connect.mayoclinic.org/comment/842397/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Comment

Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...

https://connect.mayoclinic.org/comment/728880/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Comment

I was also recently diagnosed (JAK2 ET) after having a routine blood test. I am in...

https://connect.mayoclinic.org/comment/1140842/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2024