Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

412 total results

Comment

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Comment

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Comment

Good morning, @jose10. What a lovely thing to say!! This is one of those really ‘feel...

https://connect.mayoclinic.org/comment/1458352/

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Comment

Welcome to Connect, @nobody1 Interesting concept, using ozone treatments to treat blood disorders. But to date,...

https://connect.mayoclinic.org/comment/1353738/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

Comment

Hello @patpambern, I have PV and have had spontaneous itching when newly diagnosed. I now take...

https://connect.mayoclinic.org/comment/1190759/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Comment

Hi @oliviamitza Welcome to Mayo Connect. I’m so sorry to hear that your mom’s blood condition...

https://connect.mayoclinic.org/comment/1505453/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 9:32am

Comment

I’m 76 years old and was diagnosed with polycythemia vera with Jack to in 2021. I...

https://connect.mayoclinic.org/comment/1401713/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...

https://connect.mayoclinic.org/comment/1321243/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Comment

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Comment

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018