Blood Cancers & Disorders Support Group

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Comment

I have MDS/MPN overlap with Thrombocytosis. Tested positive for the JAK2 and SRSF2 gene mutations. For...

https://connect.mayoclinic.org/comment/256904/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Comment

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 6:16am

Comment

Everyone, I learned years ago that platelet level was not the most important factor in deciding...

https://connect.mayoclinic.org/comment/846204/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Comment

Hello @wa34937, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194356/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

Comment

I had a similar situation caused by taking prescribed testosterone. I am JAK2 negative. High hemoglobin...

https://connect.mayoclinic.org/comment/889816/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I am in the same situation. I have all the symptoms but am JAK2 negative. It's...

https://connect.mayoclinic.org/comment/886516/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Comment

I have had PV with JAK2 for over 4 years. Started with phlebotomies and Hydrea, now...

https://connect.mayoclinic.org/comment/783004/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

Comment

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

Comment

In response to @Lindaw123 - I would think Vit D3 would only have an adverse reaction...

https://connect.mayoclinic.org/comment/800883/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Comment

So glad the HU worked fast for you at that low dose! Re the genetic tests,...

https://connect.mayoclinic.org/comment/1002803/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 24 8:11am