Blood Cancers & Disorders Support Group

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Comment

I believe my oncologist, a melanoma specialist, was only concerned with the melanoma and did not...

https://connect.mayoclinic.org/comment/646957/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2021

Comment

I wrote a correction today regarding my lab results that I misunderstood . I incorrectly wrote...

https://connect.mayoclinic.org/comment/1281213/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Comment

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

Comment

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

Comment

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Comment

Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...

https://connect.mayoclinic.org/comment/967362/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

Comment

According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...

https://connect.mayoclinic.org/comment/894419/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

Comment

Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2....

https://connect.mayoclinic.org/comment/787993/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022