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Discussion
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
Discussion
Essential Thrombocytosis - what's your experience with Jakifi?
I am 74, diagnosed 3 years ago. Only on one baby aspiring daily. But, my itching burning skin is getting almost unbearable on some days....
Last active: Mar 16, 2023
Discussion
polycythemia Vera
Can any tell me if sore finger tips plus elevated hgb, hct, hx DVT, severe itching, with a warm shower would need a workup for...
Last active: Aug 13, 2025
Discussion
I have side effects from Mantle Cell treatment with Rituxan
Does anyone have red painful, itching bumps on their body? I have had Immunotherapy of Rituxan, and wonder if this has caused my symptoms?Thank you,Janelle
Last active: Apr 11 12:37pm
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Last active: Feb 28, 2023
Discussion
Developed Rash on Hydroxyurea (HU)
I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...
Last active: Oct 17, 2025
Discussion
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
Last active: Nov 26, 2024
Discussion
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Last active: Aug 18, 2024
Discussion
Anyone else have EXTREME brain fog with dasatinib or imatinib?
My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...
Last active: Jul 15, 2025
Discussion
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024