Blood Cancers & Disorders Support Group

Hello my name is Ronda. I was just diagnosed with cardiac amyloid and have just had a bone marrow biopsy for multiple myloema. Still waiting...

I have Amyloidosis AL as my primary condition. I was diagnosed just over 2 years ago. Had weekly chemo for 6 months…..now in remission. I...

Recent carpal tunnel release found amyloidosis but insufficient tissue for biopsy. I live near Des Moines and she wants to send me to a cardiologist....

I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...

Diagnosed 3 years ago with Al Amyloidosis. On faspro and dex. Numbers were stalled for a year but suddenly are climbing. I feel like I'm...

My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I...

My best friend was recently diagnosed with Amyloidosis and would like to get a second opinion. What kind of specialist should she look for?

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.

Diagnosed with AL amyloidosis through blood tests- 77 years old - is a kidney biopsy necessary? I chose not to do it but am re-thinking....

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...