Blood Cancers & Disorders Support Group

Recent carpal tunnel release found amyloidosis but insufficient tissue for biopsy. I live near Des Moines and she wants to send me to a cardiologist....

Diagnosed 3 years ago with Al Amyloidosis. On faspro and dex. Numbers were stalled for a year but suddenly are climbing. I feel like I'm...

I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...

I have had 6 months CyBorD and 8 months Darzelex maintenance for AL. My Lambda Free Light Chains have been at the low end of...

I was diagnosed with AApoAIV (Apolipoprotein A-IV) Amyloidosis after a bowel resection and Egd.

My best friend was recently diagnosed with Amyloidosis and would like to get a second opinion. What kind of specialist should she look for?

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.

I have Amyloidosis AL as my primary condition. I was diagnosed just over 2 years ago. Had weekly chemo for 6 months…..now in remission. I...

Hello my name is Ronda. I was just diagnosed with cardiac amyloid and have just had a bone marrow biopsy for multiple myloema. Still waiting...

My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I...