Blood Cancers & Disorders Support Group

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo...

I was recently diagnosed at 76 years old. I have no symptoms at this time, however google tells me my prognosis is 3 to 5...