Blood Cancers & Disorders Support Group

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

Hello My mother who is 87 and has some dementia was just diagnosed with Myelofibrosis. She has had episodes where she’s fine and then suddenly...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...

Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html

Does anyone have PMF? I was diagnosed in July and still need to learn more about what is best for me. I'm a 67 yo...

I was recently diagnosed at 76 years old. I have no symptoms at this time, however google tells me my prognosis is 3 to 5...

Has anyone experienced severe foot nerve pain with myelofibrosis? I have post ET MF and medication has not changes since transformation to ET 5 years...