Blood Cancers & Disorders Support Group

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

At first I thought they were just cramps or what I call charlie horses. Then I was told they were muscle spasms. They happen at...

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on...

I'm looking for folks that have experience with Ruxolitinib and Acyclovir for treatment of PV that is progressing to Myelofibrosis. What can I do to...

Is there anyone here suffer from PMF? Or whose doctor diagnosed him primary myelofibrosis with low risk, no symptoms, my doctor is very hesitant to...

I was finally diagnosed with autoimmune myelofibrosis by the Mayo Clinic, which is a truly amazing place to get diagnosis and treatment. Doctors in my...

I am only 46, just diagnosed with Phase I MF. I am a non smoker with an active lifestyle and relatively healthy diet. We cook...

I was diagnosed with Myelofibrosis in January 2026 after a blood test related to Gout symptoms and itchy skin revealed high platelet counts. My Hematologist...

Australian-made cancer drug gets billion-dollar US FDA approval https://www.smh.com.au/national/australian-made-cancer-drug-gets-billion-dollar-us-fda-approval-20230918-p5e5gp.html