Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
1,314 total results
Discussion
MGUS and Curcumin/Tumeric
Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...
Last active: Sep 11, 2023
Discussion
MGUS FLC Ratio decreasing
I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....
Last active: Jan 12 8:34am
Discussion
MGUS at young age
Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...
Last active: Sep 28, 2023
Discussion
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6 9:09am
Discussion
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Last active: May 6, 2023
Discussion
Diagnosed last year with MGUS.
Wondering what dose and brand of curcumin others are using, as well as any specific contraindications and side effects? Thank you!
Last active: Nov 9, 2023
Discussion
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: May 29 10:06pm
Discussion
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
Last active: Jun 9, 2023
Discussion
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Last active: Jun 27 2:01pm
Discussion
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Last active: Apr 23, 2023