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Blood Cancers & Disorders Support Group

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2,001 total results
Discussion
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Last active: Feb 10, 2024
Discussion
Coffee and MGUS progression.
I am wondering if anyone knows how drinking decaf or regular coffee might affect MGUS and its progression. I am willing to cut out coffee...
Last active: Feb 12 2:22pm
Discussion
Waldenstrom's, CLL or MGUS?
Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...
Last active: Nov 2, 2024
Discussion
MGUS + pulmonary sarcoidosis
I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...
Last active: Jun 27, 2023
Discussion
Mgus and broken bones?
I’ve had 10 broken bones since Christmas. Some are with no falls to explain them, and I’ve been diagnosed with severe osteoporosis as a result....
Last active: Oct 27, 2024
Discussion
MGUS and Curcumin/Tumeric
Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...
Last active: Sep 11, 2023
Discussion
MGUS at young age
Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...
Last active: Sep 28, 2023
Discussion
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6, 2024
Discussion
MGUS Diagnosis Criteria
Hello. I have not been diagnosed with MGUS, but I'm very confused about the criteria. I have been under the care of a hematologist for...
Last active: Mar 28 9:32am
Discussion
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
Last active: Apr 24 10:36pm