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Blood Cancers & Disorders Support Group

Public Support Group
1,545 total results
Discussion
MGUS and Susceptibility to infection
I'm a teacher for special education in two small elementary schools (ages 7-13). I've 12 years left to retired. Asthma, Bronchodilation and MGUS cause susceptibility...
Last active: Oct 7 11:46pm
Discussion
MGUS and Curcumin/Tumeric
Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...
Last active: Sep 11, 2023
Discussion
MGUS & Rash
Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...
Last active: Apr 2 6:51am
Discussion
MGUS + pulmonary sarcoidosis
I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...
Last active: Jun 27, 2023
Discussion
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Last active: May 6, 2023
Discussion
Diagnosed last year with MGUS.
Wondering what dose and brand of curcumin others are using, as well as any specific contraindications and side effects? Thank you!
Last active: Nov 9, 2023
Discussion
MGUS FLC Ratio concern
Hi, I am 25M, diagnosed with MGUS at age 22 in Dec 2021. Since then my FLC ratio (IGG Lambda K/L = 0.49) has gone...
Last active: Jul 15 11:02pm
Discussion
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
Last active: Jun 9, 2023
Discussion
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: May 29 10:06pm
Discussion
MGUS FLC Ratio decreasing
I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....
Last active: Jan 12 8:34am