Blood Cancers & Disorders Support Group

My husband has MDS & has been on luspatercept for almost 3 yrs. He is now transfusion dependent. His doc is going to start treatment...

Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...

First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...

what can be done for extreme itching from myelodysplasia

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

Hello Anyone dealing with MDS and how long and how are you doing?

My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...