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Blood Cancers & Disorders Support Group

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612 total results
Discussion
Low Platelets with Myelodysplastic Syndrome (MDS)
Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...
Last active: Jan 24, 2023
Discussion
Mantle Cell Lymphoma and MDS (RARS)
Has anyone been treated for a combination of these? About 8 years I was diagnosed with MDS ( refractory anemia with ringed sideroblasts). Mantle cell...
Last active: Sep 25, 2022
Discussion
Newly diagnosed MDS-IB2 and vidaza
Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...
Last active: Dec 19, 2024
Discussion
What are your experiences with lenalidomide (Revlimid) for MDS?
My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...
Last active: Dec 29, 2024
Discussion
Anyone living with MDS Extended diagnosis experience?
Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...
Last active: 4 days ago
Discussion
MDS (myelodysplastic syndrome): When to start treatment?
My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...
Last active: Dec 3, 2024
Discussion
Anyone taking retacrit and releuko injections for MDS
My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?
Last active: Feb 1, 2024
Discussion
Anyone dealing MDS and how are you doing?
Hello Anyone dealing with MDS and how long and how are you doing?
Last active: Dec 28, 2024
Discussion
MDS: How to improve my condition in watch & wait?
I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...
Last active: Aug 3, 2023