Blood Cancers & Disorders Support Group

Has anyone been living with,ET, jac2 mutation

I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...

I was diagnosed with PV about 6 years ago. Positive for JAK2. I started HU and take 1000mg daily and low dose aspirin with usual...

This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...

Has anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)? Looking for fatigue experiences.

My journey began about 4yrs ago with routine blood work ordered by my PCP. There became a history of high white blood cell count so...

recently had moderna vaccine. platelet count went down ; then spiked up after a month. Does vaccine affect/how does it affect those with mpn's Will...

Hello, I am wondering if anyone has experienced this- I have ET JAK2 and have been taking Hydroxyurea for 2 months 1000mg per day to...

My understanding from reading is 95% of PV'ers are Jak2 positive, so I'm in the 5% with Jak2 neg. Is that a good thing? I...

Does anyone have both of these incurable diseases? How do you manage therapies for both? I'm an active 83 year old female.