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Concerned about medications for ET JAK2
I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists...
Last active: Mar 23, 2024
Discussion
Blood Cancer - JAK2 - Autoimmune- Confusion
This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...
Last active: Apr 28, 2025
Discussion
Jak2 mutations w/high WBC
My journey began about 4yrs ago with routine blood work ordered by my PCP. There became a history of high white blood cell count so...
Last active: Nov 24, 2025
Discussion
Effect of COVID vaccine on Jak2 MPN
recently had moderna vaccine. platelet count went down ; then spiked up after a month. Does vaccine affect/how does it affect those with mpn's Will...
Last active: Jul 5, 2021
Discussion
JAK2 positive, high platelets and also PAH (diagnosed)
Does anyone have both of these incurable diseases? How do you manage therapies for both? I'm an active 83 year old female.
Last active: Dec 3, 2025
Discussion
PV positive & Jak2 neg - good thing??
My understanding from reading is 95% of PV'ers are Jak2 positive, so I'm in the 5% with Jak2 neg. Is that a good thing? I...
Last active: Jul 14, 2023
Discussion
JAK2 ASXL1 Mutations: Anyone else?
My husband was diagnosed June 2019, he had been hospitalized in 2017 and went into septic shock only to realize he had a hole in...
Last active: Nov 24, 2021
Discussion
Anyone have both ET JAK2 with hereditary hemochromatosis?
Any one managing Thrombocythemia Jak2 and hemochromatosis (cys282Tyr)? I’m new to both. I started Hydrea a few weeks ago. Any insights to share? Thanks!
Last active: 2 days ago
Discussion
PV JAK2 and evolution of treatment over time
I was diagnosed with PV JAK2 a year ago and have taken HU for six weeks, then had bone marrow biopsy that shows TET2 and...
Last active: Feb 4 9:27pm