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Blood Cancers & Disorders Support Group

Public Support Group
1,118 total results
Discussion
JAK2 negative with high platelets
I have been told that my JAK2 results came back negative, which I think is a good thing, but my platelets continue to run over...
Support Group: Heart & Blood Health
Last active: Aug 18, 2023
Discussion
JAK2 V617F positive, now what?
I have been tested twice and found positive results both times for JAK2 V617F. I see Hematology in December but thought I'd ask this community...
Last active: Dec 18, 2023
Discussion
Concerned about medications for ET JAK2
I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists...
Last active: Mar 23, 2024
Discussion
Blood Cancer - JAK2 - Autoimmune- Confusion
This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...
Last active: Apr 3, 2023
Discussion
Effect of COVID vaccine on Jak2 MPN
recently had moderna vaccine. platelet count went down ; then spiked up after a month. Does vaccine affect/how does it affect those with mpn's Will...
Last active: Jul 5, 2021
Discussion
JAK2 positive, high platelets and also PAH (diagnosed)
Does anyone have both of these incurable diseases? How do you manage therapies for both? I'm an active 83 year old female.
Last active: May 14, 2023
Discussion
JAK2 ASXL1 Mutations: Anyone else?
My husband was diagnosed June 2019, he had been hospitalized in 2017 and went into septic shock only to realize he had a hole in...
Last active: Nov 24, 2021
Discussion
PV positive & Jak2 neg - good thing??
My understanding from reading is 95% of PV'ers are Jak2 positive, so I'm in the 5% with Jak2 neg. Is that a good thing? I...
Last active: Jul 14, 2023
Discussion
Jak2 Detected, Healthy otherwise, What's next?
Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...
Last active: Sep 29, 2023