Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
354 total results
Discussion
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Last active: Aug 18, 2024
Discussion
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
Discussion
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Last active: Apr 13, 2024
Discussion
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024
Discussion
Is Cutaneous T-Cell Lymphoma a Death Sentence?
Hi, I’m 61 years old. Not 100% diagnosed yet. They still have to do a genetic organization test. But biopsy came back with elevated white...
Last active: Dec 8, 2024
Discussion
High Eosinophils with pain in left side under ribs and very itchy
Hi, my name is Gina and I am new to this site. I have been suffering for four years with very high heels on and...
Last active: Nov 29, 2024
Discussion
Odd symptoms
My symptoms come and go and have been for a couple years now. My blood work appears normal. Has anyone had symptoms similar? All over...
Last active: Feb 5, 2024
Discussion
Ive been to passive with my dr's I believe.
Hello all and Happy Holidays! I could use some input. I have been to so many dr’s trying to find out why I’ve been feeling...
Last active: Dec 18, 2019
Discussion
Blood Cancer - JAK2 - Autoimmune- Confusion
This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...
Last active: Apr 3, 2023