505 total results
Discussion
polycythemia Vera
Can any tell me if sore finger tips plus elevated hgb, hct, hx DVT, severe itching, with a warm shower would need a workup for...
Comment
On Revlimid for over 4 years and have had minor rashes or itching skin. I have...
https://connect.mayoclinic.org/comment/1521105/
Comment
Yes. I have Myelofibrosis “and” Erdheim Chester Disease, and the first sign - although no doctor...
Comment
@heimbca Yes, that’s Jakafi. Not for everyone. Wasn’t for me. Felt like it was killing me....
Comment
Family member has PV. She has itching too. I read that extra warm showers encourage itching....
Comment
Hi Cindylb, I was diagnosed with cutaneous T-cell lymphoma in 2017. I had a hysterectomy and...
Discussion
Essential thrombocythemia (ET) and breaking out in hives: What helps?
I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...
Discussion
Developed Rash on Hydroxyurea (HU)
I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a...
Discussion
Acquired Von Willebrand syndrome
I was recently diagnosed with Acquired Von Willebrand syndrome. I went to the hematologist initially because I was seriously concerned about massive bruising I was...
Discussion
How much of a risk factor is high white blood cell count with pv?
I have been on hydroxyurea for 6 weeks. I feel OK and the itching is tolerable. My hematocrit and platelet count are normal, but my...
Discussion
Is Cutaneous T-Cell Lymphoma a Death Sentence?
Hi, I’m 61 years old. Not 100% diagnosed yet. They still have to do a genetic organization test. But biopsy came back with elevated white...
Discussion
Anyone else have EXTREME brain fog with dasatinib or imatinib?
https://connect.mayoclinic.org/discussion/anyone-else-have-extreme-brain-fog-with-dasatinibimatinib/
My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...
Discussion
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Discussion
Anyone have information about late stages of primary myelofibrosis?
Does anyone have a link to information regarding late stages of PMDS?My diagnosis is primary myelofibrosis. I’m probably two years into this disease without realizing...
Discussion
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
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