Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
822 total results
Discussion
Newly Diagonised CLL in March
I am in the watch and wait stage and next appointment is in September. I have had 2 sinus infections within a month, night sweats,...
Last active: Jun 2 9:09am
Discussion
CLL with lambda monoclonal gammopathy
I am so pleased to have found this group, have read so many posts. I am 81 years old and 1 year ago was dxed...
Last active: Apr 24, 2023
Discussion
CLL and Managing an Enlarged Spleen
I have CLL and my recent CT scan indicates an enlarged spleen "Spleen: Enlarged, measuring 14.6 cm in length". Is that substantially larger than normal,...
Last active: Apr 3, 2021
Discussion
CLL - Symptoms at Stage 0
Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...
Last active: May 6, 2024
Discussion
Chronic lymphocytic leukemia (CLL)
I had a colonoscopy & gastroscopy performed recently and as preparation a CBC was done and unbeknown to me a pererhal blood smear. The procedcures...
Last active: Jan 6 9:51am
Discussion
Anyone have experience with applying for disability with CLL?
Hello! I am writing this on behalf of someone else who is in the beginning stage of CLL. Does anyone have experience with applying for...
Last active: Jun 1 8:50pm
Discussion
CLL - Follow Up Appointment Questions
Hi everyone- I don't know if anyone else after they were first diagnosed noticed that now everywhere you turn, everything you see is cancer this,...
Last active: Feb 27, 2024
Discussion
To continue or stop Venclexta treatment for CLL?
I was diagnosed with CLL in October 2021 at the age of 59. My Dad was also diagnosed with CLL @ 60 years old. His...
Last active: Jan 12 7:18pm
Discussion
CLL - Precluded from Other Studies
I had seen a reference in a new study on osteoporosis drugs that precluded participation by anyone with a bone marrow disorder. Now for the...
Last active: Oct 9, 2024