Blood Cancers & Disorders Support Group

Diagnosed 3 years ago with Al Amyloidosis. On faspro and dex. Numbers were stalled for a year but suddenly are climbing. I feel like I'm...

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.

Diagnosed with AL amyloidosis through blood tests- 77 years old - is a kidney biopsy necessary? I chose not to do it but am re-thinking....

My best friend was recently diagnosed with Amyloidosis and would like to get a second opinion. What kind of specialist should she look for?

Hello. My dad was recently diagnosed with AL Amyloidosis. We live in northcentral WI and he is ready to take a step up in the...

I have shortness of breath, neuropathy, enlarged tongue, carpal tunnel syndrome, bruising under eyes. Negative fat pad biopsy

CAEL 101 seems to be the only effective treatment for reduction of amyloid fibrils of the heart in Al Amyloidosis. I’m reading conflicting information about...

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

I have many symptoms of amyloidosis. I had a PyP scan an of heart. Result was equivical- meaning not not neg, but not pos either....

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...