Blood Cancers & Disorders Support Group

Diagnosed 3 years ago with Al Amyloidosis. On faspro and dex. Numbers were stalled for a year but suddenly are climbing. I feel like I'm...

I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...

Recent carpal tunnel release found amyloidosis but insufficient tissue for biopsy. I live near Des Moines and she wants to send me to a cardiologist....

I have Amyloidosis AL as my primary condition. I was diagnosed just over 2 years ago. Had weekly chemo for 6 months…..now in remission. I...

I have had 6 months CyBorD and 8 months Darzelex maintenance for AL. My Lambda Free Light Chains have been at the low end of...

CAEL 101 seems to be the only effective treatment for reduction of amyloid fibrils of the heart in Al Amyloidosis. I’m reading conflicting information about...

I have shortness of breath, neuropathy, enlarged tongue, carpal tunnel syndrome, bruising under eyes. Negative fat pad biopsy

My best friend was recently diagnosed with Amyloidosis and would like to get a second opinion. What kind of specialist should she look for?

Diagnosed with AL Amyloidosis. Would like to hear from someone about what to expect. Have not started treatment yet.

Hello my name is Ronda. I was just diagnosed with cardiac amyloid and have just had a bone marrow biopsy for multiple myloema. Still waiting...