Blood Cancers & Disorders Support Group

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Comment

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Comment

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024

Comment

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Comment

Hi Optimust, Thank you for your reply. I was aware that vitamin B12 is water soluble...

https://connect.mayoclinic.org/comment/198913/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Comment

Hello @patpambern, I have PV and have had spontaneous itching when newly diagnosed. I now take...

https://connect.mayoclinic.org/comment/1190759/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Comment

Welcome to Connect, @nobody1 Interesting concept, using ozone treatments to treat blood disorders. But to date,...

https://connect.mayoclinic.org/comment/1353738/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

Comment

Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...

https://connect.mayoclinic.org/comment/1321243/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Comment

I’m 76 years old and was diagnosed with polycythemia vera with Jack to in 2021. I...

https://connect.mayoclinic.org/comment/1401713/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

Comment

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Comment

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018