Blood Cancers & Disorders Support Group

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Comment

Hello Lori, You once commented on a response I made about finding a specialist for MPNs....

https://connect.mayoclinic.org/comment/1064989/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9, 2024

Comment

Stimme Sorry but I can't help you with the myelofibrosis because I have splenic marginal zone...

https://connect.mayoclinic.org/comment/591662/

Discussion: Chemo tablet or splenomegaly to reduce spleen enlargement?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2021

Comment

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

Comment

Hello friends! I have PV NOW PROGRESSED TO MF MYELOFIBROSIS ! Hot humid weather is brutal...

https://connect.mayoclinic.org/comment/1336577/

Discussion: Hot weather & Chemo/Treatments

Support Group: Blood Cancers & Disorders

Posted: Jun 27 3:44pm

Comment

Hi @bjsdancer, I'm tagging @rcand10s who wrote about being diagnosed with Primary Myelofibrosis in 2013. I'm...

https://connect.mayoclinic.org/comment/101833/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

Comment

I took my first injection of Besremi last week. My doctor's office is working on setting...

https://connect.mayoclinic.org/comment/1234766/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:21pm

Comment

I see my additional messages may not have reached you. Go to pvreporter . com. There...

https://connect.mayoclinic.org/comment/1259837/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 7:03pm

Comment

I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...

https://connect.mayoclinic.org/comment/1164101/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

Comment

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

Comment

Thank you for the message and information. 🙏 it means so much to my husband and...

https://connect.mayoclinic.org/comment/1255061/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 7:22pm