Blood Cancers & Disorders Support Group

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Comment

Also, I might add that a few years ago they thought it may have morphed into...

https://connect.mayoclinic.org/comment/1051289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15 2:24pm

Comment

I was just diagnosed last week with ET (CALR mutation) as a result of a marrow...

https://connect.mayoclinic.org/comment/776073/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2022

Comment

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11 9:23am

Comment

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Comment

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

Comment

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Comment

Thanks. I am new to this and definitely want to see the amin discussion so you...

https://connect.mayoclinic.org/comment/203951/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Comment

Hello @akeytoo, I don’t think anyone is fond of chemo treatments but they can be absolutely...

https://connect.mayoclinic.org/comment/911908/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Comment

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Comment

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023