Blood Cancers & Disorders Support Group

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Comment

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

Comment

This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...

https://connect.mayoclinic.org/comment/1209703/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Comment

I posted a year ago about seeing a specialist in Myelofibrosis at Mayo Clinic. Dr. Tefferi...

https://connect.mayoclinic.org/comment/1412441/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2025

Comment

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2025

Comment

Hi, @toste. I looked at your profile and see that you have found Myelofibrosis-related discussions and...

https://connect.mayoclinic.org/comment/1433259/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Comment

@gajokos I’m bad with remembering dates and timelines, but yes, I probably joined this forum fairly...

https://connect.mayoclinic.org/comment/1503486/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:06pm

Comment

Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....

https://connect.mayoclinic.org/comment/132609/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

Comment

Wow. I'm terrible at this posting stuff I guess. I just saw that you had asked...

https://connect.mayoclinic.org/comment/1039752/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

Comment

@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...

https://connect.mayoclinic.org/comment/1432393/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...

https://connect.mayoclinic.org/comment/1194113/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024