Blood Cancers & Disorders Support Group

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I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

Comment

I've had ET with Jak2 since 2020 and on HU with baby aspirin, I've recently found...

https://connect.mayoclinic.org/comment/1414548/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

@sdcgcarroll Hi I have ET and Jak2 as well. I haven't found alot of information about...

https://connect.mayoclinic.org/comment/1545394/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 7:26am

Comment

Realized I did not answer your initial question. I am not a dr, but my understanding...

https://connect.mayoclinic.org/comment/720876/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2022

Comment

Curious if your doctors are tracking your JAK2 Variant Allele Frequency (VAF) on a regular basis?...

https://connect.mayoclinic.org/comment/1550728/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Comment

I do have JAK2. Platelets have been in the 700's since I had to come off...

https://connect.mayoclinic.org/comment/1067492/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

@1995victoria, those are all good questions to ask at your next appointment with oncology. I would...

https://connect.mayoclinic.org/comment/1417629/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 17, 2025

Comment

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024