Blood Cancers & Disorders Support Group

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Comment

Welcome to Connect, @isabellereine. You’re not crazy but you certainly are complicated! ☺️ For being only...

https://connect.mayoclinic.org/comment/1197279/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Comment

Hi @markgventnor, it’s not unusual for people to experience itching when they have a blood cancer...

https://connect.mayoclinic.org/comment/992982/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Comment

I can only share my experiences with rashes, and tormenting itching. My cause is unknown, but...

https://connect.mayoclinic.org/comment/744319/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Comment

I have been doing very well with Procrit shots every 4-5 months, in a series of...

https://connect.mayoclinic.org/comment/226233/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Comment

Can I ask what level of dosage y’all that are posting here are on? I’ve been...

https://connect.mayoclinic.org/comment/1356957/

Discussion: Can I take Hydroxyurea in a dab of applesauce?

Support Group: Blood Cancers & Disorders

Posted: Jul 26 12:09pm

Comment

I have been on HU for about five years. 500mg 4x week for Polycythemia Vera. I...

https://connect.mayoclinic.org/comment/1307330/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18 11:56pm

Comment

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Comment

I’m 72, on 500mh/day for 1.5 years. I’ve had some intermittent inside elbow itching for which...

https://connect.mayoclinic.org/comment/1173254/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

Comment

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Hi @jacklyn, Well shucks, those weren’t the results you were hoping for with the blood work....

https://connect.mayoclinic.org/comment/1336129/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 27 7:25am