Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

762 total results

Comment

cindyborch, Tomorrow for sure you will have great informative posts to ease your mind. Many of...

https://connect.mayoclinic.org/comment/1282903/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 16 12:34am

Comment

My husband has MDs. Low platelets. They were at 28k. I started him on papaya and...

https://connect.mayoclinic.org/comment/1211664/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14 9:03pm

Comment

Hello @daleanddonna It’s been a couple of weeks since you wrote in about your husband’s MDS...

https://connect.mayoclinic.org/comment/1304491/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: May 15 7:39am

Comment

I too have been diagnosed with MDS. I was actually donating platelets before 2021. In June...

https://connect.mayoclinic.org/comment/1052788/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Comment

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Comment

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Comment

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Comment

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Comment

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024