Blood Cancers & Disorders Support Group

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Comment

Welcome to Mayo Connect, @amterrazas1. Stereotactic body radiotherapy (SBRT) is a type of precisely focused radiation...

https://connect.mayoclinic.org/comment/1539487/

Discussion: Anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:05am

Comment

Hi @suanne90. You’ve popped into a conversation in the Blood Cancers & Disorders Support Group. The...

https://connect.mayoclinic.org/comment/1166282/

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Comment

Hello @kapow and @winmil99. Welcome to Mayo Connect! I thought I’d include both of you in...

https://connect.mayoclinic.org/comment/887257/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

Most ET patients live a normal life span. My dad had it and lived to be...

https://connect.mayoclinic.org/comment/1525738/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 13 7:05am

Comment

Hi @healedbytheblood0119, you're right to do your research about best treatments for essential thrombocythemia. Anagrelide and...

https://connect.mayoclinic.org/comment/1010081/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

I also have ET. I need to find out if it is Essential Thrombocythemia or thrombocytosis?...

https://connect.mayoclinic.org/comment/805573/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

Comment

Just the hydroxy. i am still waiting to learn what the next step will be. My...

https://connect.mayoclinic.org/comment/791454/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2023

Comment

84 years old on Hydroxyurea 10 years for Essential Thrombocythemia. Numbers usually 600-700. On 28 pills...

https://connect.mayoclinic.org/comment/1370260/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2025

Comment

Hi @emma1971, Welcome to Connect. The medication you’re referring to, Ruxolitinib is actually a medication used...

https://connect.mayoclinic.org/comment/1293785/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Comment

Issues with our eyes are scary for sure. To offer a quick (not necessarily final) answer...

https://connect.mayoclinic.org/comment/1556601/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: Apr 22 7:51am

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