Blood Cancers & Disorders Support Group

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Comment

So sorry to hear this about both being coupled as in your case! Amyloidosis sometimes seems...

https://connect.mayoclinic.org/comment/869639/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

Yes, thanks. She has AL amyloidosis. She got her stem cells back Friday. When she is...

https://connect.mayoclinic.org/comment/273513/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 26, 2019

Comment

yes, what you learned is correct. The AvWS was diagnosed first, and when the usual suspects...

https://connect.mayoclinic.org/comment/1185087/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

@buckett “Have any other males out there on this forum with MGUS seen this if cytogenetic...

https://connect.mayoclinic.org/comment/1221769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 10:25pm

Comment

@nick0820 Please keep us in the loop of communication! It's great you are not letting this...

https://connect.mayoclinic.org/comment/88332/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

Comment

Hello, @bob100! My name is also Sherry, and I was also diagnosed with AL amyloidosis in...

https://connect.mayoclinic.org/comment/1041681/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

Just got back a Positive Amyloid fat pad biopsy Everyone I talked to prior to the...

https://connect.mayoclinic.org/comment/1082452/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Comment

I was recently diagnosed and I am about to finish or rather complete a series of...

https://connect.mayoclinic.org/comment/962761/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

Comment

Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...

https://connect.mayoclinic.org/comment/724431/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2022

Comment

I have smouldering myeloma (mcus) they have never said any diet for this but check out...

https://connect.mayoclinic.org/comment/81212/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020