Blood Cancers & Disorders Support Group

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Comment

would you be kind enough to provide the link to I.W.M.F. please. I have Waldrenstroms.

https://connect.mayoclinic.org/comment/1383101/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Comment

Hi, I've had IgM lambda MGUS for a few years that has been advancing to Waldenstrom"s...

https://connect.mayoclinic.org/comment/1356871/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Comment

Thank you all so much…. I know there is no cure for Waldenstroms but it is...

https://connect.mayoclinic.org/comment/1330696/

Discussion: Palliative care?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Comment

Hi Lori, really do appreciate your feedback, you are first person to give me feedback, I...

https://connect.mayoclinic.org/comment/1312773/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Good question. I live near beach in California and cover up big time since we are...

https://connect.mayoclinic.org/comment/1310389/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

Comment

@amazon13, what is your current diagnosis? What test result indicated that you didn't have Waldenström macroglobulinemia?...

https://connect.mayoclinic.org/comment/1244112/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

I find it interesting that this conversation thread ended in November 2023. Is it continued somewhere...

https://connect.mayoclinic.org/comment/1200599/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024

Comment

I have full blown Waldenstroms lymphoma and on Imbruvica for over 6 months and prednisone. Just...

https://connect.mayoclinic.org/comment/1181350/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2024

Comment

I also had a long duration cold in Oct. I ended up with a sinus infection...

https://connect.mayoclinic.org/comment/1178696/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Comment

Diagnosis was Waldenstroms after bone marrow biopsy and tons of blood work and scans. Still on...

https://connect.mayoclinic.org/comment/1176335/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024