Blood Cancers & Disorders Support Group

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Comment

Hi I am on a similar treatment for AL amyloidosis kappa light chain. My treatment includes...

https://connect.mayoclinic.org/comment/1205328/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

Comment

I am having tremors in the hands, arms and legs which leads to falling down. I...

https://connect.mayoclinic.org/comment/104728/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2018

Comment

Hi. I have been using a Philips System One CPAP for about 12 years and just...

https://connect.mayoclinic.org/comment/660227/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Comment

I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of...

https://connect.mayoclinic.org/comment/88329/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2019

Comment

But - will ultra sound show if I have the amyloid protein in any heart tissue...

https://connect.mayoclinic.org/comment/1117279/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Comment

I was just diagnosed with systemic amyloidosis al I start chemo 4-8-24 am scared. They said...

https://connect.mayoclinic.org/comment/1042422/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Comment

If it is SMM then likely waiting to see if it morphs to MM. I don't...

https://connect.mayoclinic.org/comment/1151734/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

Comment

@dazlin Thanks, dazzle. I think what is happening is that my systemic amyloidosis has invaded either...

https://connect.mayoclinic.org/comment/106680/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

Comment

@annie14 thank you. What you’ve described is incredibly valuable and could help many others facing a...

https://connect.mayoclinic.org/comment/1462438/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Comment

Welcome to Connect @3419harrison, AL Amyloidosis is a disease which occurs when a protein called amyloid...

https://connect.mayoclinic.org/comment/1112342/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024