Blood Cancers & Disorders Support Group

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Comment

I have MDS, Myelodysplastic syndrome, refractory anemia with ring sideroblast. SF3B1 mutation positive. I receive Epoetin...

https://connect.mayoclinic.org/comment/1255124/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:42pm

Comment

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors....

https://connect.mayoclinic.org/comment/1183083/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Comment

Well had bone marrow biopsy today so waitin for results in few days will be lookin...

https://connect.mayoclinic.org/comment/815158/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Comment

Hi @raetp. Oh golly, this isn’t news anyone expected to see, especially your brother on his...

https://connect.mayoclinic.org/comment/1117815/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Comment

I have been dealing with the neuroendocrine for a year and a half...stable Just found out...

https://connect.mayoclinic.org/comment/1056257/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Comment

I took Revlimid for my MDS. It brought my hemoglobin up to where it's suppose to...

https://connect.mayoclinic.org/comment/815745/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Comment

Good morning @jelilien. Myelodysplastic syndromes (MDS) are a group of disorders caused by blood cells that...

https://connect.mayoclinic.org/comment/886413/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Comment

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Comment

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 9:39pm