Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

443 total results

Comment

@sme225 Thank you for telling me. What is Jakafi? I had thought previously to reading your...

https://connect.mayoclinic.org/comment/1432358/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

Comment

Hello friends! I have been on JAKAFI for longer than a year I get terrible leg...

https://connect.mayoclinic.org/comment/1379113/

Discussion: Does anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2025

Comment

Hydroxyurea caused unusual tiredness and weakness. All I wanted to do was sleep or do nothing...

https://connect.mayoclinic.org/comment/1016782/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Comment

Dépendant on your meds - example Jakafi : NO grapefruit in any kind of form. And...

https://connect.mayoclinic.org/comment/845486/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

And good luck to you, AngieP. Three days on from Acupuncture and I’m still doing well....

https://connect.mayoclinic.org/comment/855070/

Discussion: Does Acupuncture help low back pain caused by multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2023

Comment

I was diagnosed with ET in 1992. I was 46. It was found on a routine...

https://connect.mayoclinic.org/comment/1419750/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

Comment

I too had hair loss on hydrea. Was switched to Jakafi after a few months and...

https://connect.mayoclinic.org/comment/889143/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2023

Comment

I’m 76 and was diagnosed with PV/ Jak 2. 3 yrs ago .I have been on...

https://connect.mayoclinic.org/comment/1236551/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Comment

I don't know your weight, but it would make sense that you'd start with a minimal...

https://connect.mayoclinic.org/comment/1218283/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2025

Comment

Three months after starting HU I developed a very itchy rash and had a fever of...

https://connect.mayoclinic.org/comment/1035795/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2024