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989 total results
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Discussions (64)
Comments (925)
Comment
Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...
https://connect.mayoclinic.org/comment/789840/
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Discussion:
MGUS with Polycythemia Vera (PV)
Support Group:
Blood Cancers & Disorders
Posted: Dec 28, 2022
Comment
According to my Heme doc, not all ETs are cancer. I have Jak2, which is not...
https://connect.mayoclinic.org/comment/894419/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jul 12, 2023
Comment
Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...
https://connect.mayoclinic.org/comment/967362/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Nov 19, 2023
Comment
Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to...
https://connect.mayoclinic.org/comment/974124/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Dec 2, 2023
Comment
Hi - I have been diagnosed with chronic eosinophilic leukemia and the test that diagnosed it...
https://connect.mayoclinic.org/comment/1062089/
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Discussion:
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Support Group:
Blood Cancers & Disorders
Posted: May 4 12:27pm
Comment
Hmmm I am from Canada. The HU capsules I was given are bright pink and blue....
https://connect.mayoclinic.org/comment/1161210/
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Discussion:
HU & Titanium Oxide
Support Group:
Blood Cancers & Disorders
Posted: Oct 22 8:20pm
Comment
For everyone’s info, I messaged through the patient portal and was told up to 10 days...
https://connect.mayoclinic.org/comment/231795/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 19, 2019
Comment
I don't think anyone is telling people not to travel, just to take their meds and,...
https://connect.mayoclinic.org/comment/1089550/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 19 7:15am
Comment
I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...
https://connect.mayoclinic.org/comment/861686/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: May 18, 2023
Comment
Hello and I am new to this. My brother just got his JAK2 V617F back and...
https://connect.mayoclinic.org/comment/834314/
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Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Mar 30, 2023
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