Blood Cancers & Disorders Support Group

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Am I understanding right that your hemoglobin and hemocrit are high, you have PV symptoms, you're...

https://connect.mayoclinic.org/comment/888838/

Discussion: PV positive & Jak2 neg - good thing??

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

Comment

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

I do have JAK2. Platelets have been in the 700's since I had to come off...

https://connect.mayoclinic.org/comment/1067492/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Comment

Hi Steve My case is similar to yours. I was treated with Hydroxyurea for7 yrs for...

https://connect.mayoclinic.org/comment/913626/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

Comment

I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check...

https://connect.mayoclinic.org/comment/1132796/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

Comment

I could use any links that you have also. It is hard finding I anything on...

https://connect.mayoclinic.org/comment/1395872/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

also, to be clear.. I haven't been properly "diagnosed" yet I don't think... just my hematologist's...

https://connect.mayoclinic.org/comment/840529/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

I, too, have a JAK2 mutation with a low hemoglobin, slight increase in WBCs and elevated...

https://connect.mayoclinic.org/comment/878925/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

Comment

Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted...

https://connect.mayoclinic.org/comment/231783/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019