Blood Cancers & Disorders Support Group

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Comment

Yes, perfect, thanks. They found the CALR mutation on me. I still haven't figured out if...

https://connect.mayoclinic.org/comment/1102868/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

Blood draw today. Platelets were down from 11/2. I know the platelets go down when I...

https://connect.mayoclinic.org/comment/973027/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

Comment

@sonieaml The SRSF2 gene us a splicing gene normally associated with MDS. The JAK2 gene is...

https://connect.mayoclinic.org/comment/1551390/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 4:14pm

Comment

Hi I'm 78 with ET , JAK2 and on Hydra since December2025. So far only slight...

https://connect.mayoclinic.org/comment/1508241/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 17 2:58pm

Comment

@1995victoria Based on this, there's no reason to think that your (or anyone else's) endometrial cancer...

https://connect.mayoclinic.org/comment/1419690/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

Comment

Hi @mumma, Welcome to Mayo Connect. I see you’ve been diagnosed with Polycythemia Vera and would...

https://connect.mayoclinic.org/comment/773417/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Comment

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Comment

Hi @mcullen123 you may have noticed I moved your post to this existing discussion on Jak2...

https://connect.mayoclinic.org/comment/194295/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Comment

I recently got diagnosed with PV Jak2 positive, thrombosis. I have had 2 phlebotomies and so...

https://connect.mayoclinic.org/comment/900498/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Comment

@princess86 I am so sorry for what you've been through, princess86. But thank you for sharing...

https://connect.mayoclinic.org/comment/1558321/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 24 9:03am

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