Blood Cancers & Disorders Support Group

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Comment

Good morning- Your comments are right on target. I need some direction as I seek clinical...

https://connect.mayoclinic.org/comment/663899/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2021

Comment

Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for...

https://connect.mayoclinic.org/comment/1184720/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Comment

I recently got diagnosed with PV Jak2 positive, thrombosis. I have had 2 phlebotomies and so...

https://connect.mayoclinic.org/comment/900498/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Comment

My hematology/Oncology doctor as well as our blood lab facility has said anything under 50 is...

https://connect.mayoclinic.org/comment/1545657/

Discussion: Iron Deficiency Anemia: At what ferritin level do you get infusions?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:03am

Comment

I had fatigue initially but after being on hydroxyurea for 6 months (500 mg day) and...

https://connect.mayoclinic.org/comment/1538746/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 11:36am

Comment

I am 68 and have had 3 TIA, most recent one on January 13, 2026. My...

https://connect.mayoclinic.org/comment/1505958/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 6:50pm

Comment

I have ET JAK2 and was diagnosed using genetic blood tests. My doctor told me that...

https://connect.mayoclinic.org/comment/1022801/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Comment

He is also Jak2 positive (which I should have stated). His blood pressure did come down...

https://connect.mayoclinic.org/comment/795695/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

My mom has mutated JAK2 and was told not changes to her medication for the Moderna...

https://connect.mayoclinic.org/comment/607450/

Discussion: Effect of COVID vaccine on Jak2 MPN

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2021

Comment

My diagnosis is Atypical Chronic myeloid leukemia. JAK2 mutation. There isn’t a protocol to treat it...

https://connect.mayoclinic.org/comment/907572/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023