Blood Cancers & Disorders Support Group

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Comment

Welcome to Connect, @patpambern. Having itchy skin seems to be pretty common with Polycythemia Vera. There...

https://connect.mayoclinic.org/comment/1036922/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

Comment

Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....

https://connect.mayoclinic.org/comment/1125122/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2024

Comment

I have PV and experienced hair loss when taking Hydroxyurea 7 days a week but it...

https://connect.mayoclinic.org/comment/1211910/

Discussion: Hair loss with ET and on hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2025

Comment

Interesting, isn’t it? I never would have put together sleep apnea or lack of sleep together...

https://connect.mayoclinic.org/comment/781950/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

New here. Being tested for primary vs secondary polycythemia Vera. Trying to stay away from Google...

https://connect.mayoclinic.org/comment/875474/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Comment

Hi @favy2. It would be great for someone who needs therapeutic blood draws to be able...

https://connect.mayoclinic.org/comment/851324/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Comment

Lynnevb, I have been taking jakafi for almost two years with no side effects.I was diagnosed...

https://connect.mayoclinic.org/comment/1003544/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Comment

I’ve had Polycythemia Vera for 14 yrs, then RBC went up, I was prescribed taking 1000mg...

https://connect.mayoclinic.org/comment/1270863/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2025

Comment

Welcome to Connect @mahmoudbakry. Diagnosis blood conditions can get a little tricky. It’s often like trying...

https://connect.mayoclinic.org/comment/1022164/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Comment

Attended my first IWMF educational forum as a virtual attendee. Very helpful since I have been...

https://connect.mayoclinic.org/comment/1578963/

Discussion: Is it Waldenstrom Macroglobulinemia?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

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