Blood Cancers & Disorders Support Group

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Comment

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Comment

My prayers go out to the people who are struggling with MDS. May God bring you...

https://connect.mayoclinic.org/comment/1134458/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

Comment

I was diagnosed last year. I have MDS with del(5q). The initial diagnosis was confirmed with...

https://connect.mayoclinic.org/comment/1031602/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Comment

Dear Gemma, My first suggestion is a bone marrow biopsy. Don't stress over not knowing, find...

https://connect.mayoclinic.org/comment/1418189/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

Comment

Hi Brenda, As someone else who posted here said “Be your own advocate.” Since you are...

https://connect.mayoclinic.org/comment/963403/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Comment

@garyrp, I apologize for my delayed welcome to Connect. If you don't mind, are you comfortable...

https://connect.mayoclinic.org/comment/196818/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: May 7, 2018

Comment

I was diagnosed last April with MDS with anemia. I am taking hormone injections to help...

https://connect.mayoclinic.org/comment/1526759/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:59am

Comment

Hi Hollie, There are several different types of MDS that indicate whether you are low or...

https://connect.mayoclinic.org/comment/962436/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023