Blood Cancers & Disorders Support Group

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Comment

I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...

https://connect.mayoclinic.org/comment/1265110/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Comment

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...

https://connect.mayoclinic.org/comment/898854/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Are you retaining fluid? This could be causing your shortness of breath. Normally 95% O2 wouldn't...

https://connect.mayoclinic.org/comment/1318883/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

Comment

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Comment

@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...

https://connect.mayoclinic.org/comment/906775/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Comment

Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...

https://connect.mayoclinic.org/comment/104684/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2016

Comment

Labs were done prior to the office visit Repeat labs and follow-up office visit in 3...

https://connect.mayoclinic.org/comment/753810/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

Comment

Hello @tlcox49. You are facing a lot of symptoms and diagnoses. I am inspired by your...

https://connect.mayoclinic.org/comment/104733/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2018

Comment

Ww, @cousinvinney. You must be processing quite a bit of information now that you received a...

https://connect.mayoclinic.org/comment/1533184/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:15pm

Comment

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024