Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,473 total results

Comment

Cml under control now have Jak2 2 mutation doctor put me on jakifi and on tasigna...

https://connect.mayoclinic.org/comment/194294/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Comment

Hi, I was diagnosed with Jak2 exon 14 + Thrombocytsis + Reticulin Fibrosis. I find it...

https://connect.mayoclinic.org/comment/978136/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Comment

Does anybody else experience this? Is this “normal”? Not sure if it’s the ET JAK2 or...

https://connect.mayoclinic.org/comment/1554410/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

Comment

Thank you! Blood clots are scary. So glad they caught yours in time. I guess I...

https://connect.mayoclinic.org/comment/943845/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Comment

Yes, MPNs are slow-growth blood cancers. JAK2 is not a blood cancer itself but is the...

https://connect.mayoclinic.org/comment/988458/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

Comment

I do not have any symptoms, I have JAK2 and high platelets were found at my...

https://connect.mayoclinic.org/comment/878406/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

I’m currently being tested for polythecemia vera. JAK2 at the end of May. A bit anxious....

https://connect.mayoclinic.org/comment/857807/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

Comment

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Hi, im jak2 negative with continous high platelets 500-800 range im 31 asymptomatic , discovered over...

https://connect.mayoclinic.org/comment/194358/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

Comment

Has anyone suggested DNA/genetic testing? That's what my Heme doc (an MPN specialist) did, and I...

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024