Blood Cancers & Disorders Support Group

Has anyone had any experience with the Jakifi box test?My HO was excited to use it to see if Jakafi was working in mycase. It...

In March 2025 I broke my upper femur, hip and ankle requiring two surgeries. The repair for my hip involved a "nail"in my femur attached...

Hello, am I crazy? I'm a 23-year-old biological female with a complex medical history. I'm going to list my pre-existing conditions, before I started hematological...

Has anyone taken Vonjo (pacritinib) a JAK 2 Inhibitor? If so what were the effects and how long were you able to take the medication?...

I have just recently been diagnosed with JAK 2 positive ET and I am only 48. Coming to terms with the “c” word has been...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...

I am A soon to be 70 year old woman with ET, JAK 2. Since I am on HU (500 mg/day), sensitive to sun and...

Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...

I was diagnosed with MPN JAK-2 last year. Polycythemia Vera and/or essential thrombocytopenia Initially needed 2 phlebotomy’s and 2 Gm/day Hydroxyurea. Labs tanked so slowly...