Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,217 total results

Comment

Welcome to our group. I was very interested to read that you have both ET and...

https://connect.mayoclinic.org/comment/786724/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

My diagnosis is Atypical Chronic myeloid leukemia. JAK2 mutation. There isn’t a protocol to treat it...

https://connect.mayoclinic.org/comment/907572/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

Comment

My son must have had the molecular panel because he does NOT have Jak2, but does...

https://connect.mayoclinic.org/comment/194323/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2019

Comment

Yes, perfect, thanks. They found the CALR mutation on me. I still haven't figured out if...

https://connect.mayoclinic.org/comment/1102868/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834309/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Comment

Hi Linda- I’ve read studies showing vitamin D deficiency and blood clotting correlation in Jak2 mutations,...

https://connect.mayoclinic.org/comment/662205/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Comment

Wow! You must have a strong stomach to be able to take 325mg of aspirin. I...

https://connect.mayoclinic.org/comment/975891/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Comment

With me they found high platelets and had me see a hematologist who tested for jak2...

https://connect.mayoclinic.org/comment/974148/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Comment

I am currently taking 500 mg Hydroxyurea on Monday/Wednesday/Friday. Headaches are less. I have ET JAK2....

https://connect.mayoclinic.org/comment/940964/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I was diagnosed around 2 1/2 years ago and agree that blood results along with JAK2...

https://connect.mayoclinic.org/comment/937883/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2023