Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

411 total results

Comment

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Comment

Here is another article: https://www.curetoday.com/view/expanding-on-a-new-way-to-manage-polycythemia-vera-without-iron-deficiency This drug manages your iron level to control the red blood...

https://connect.mayoclinic.org/comment/1324827/

Discussion: New research seems to give hope of new treatment for PV

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Comment

Our son was diagnosed with Polycythemia Vera Primary at 38 years old. He is 61. His...

https://connect.mayoclinic.org/comment/1505544/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 11:00am

Comment

I’m going through the same thing. I really feel it would alleviate many of the side...

https://connect.mayoclinic.org/comment/1330295/

Discussion: Leiden Factor V: Can I use hormone replacement therapy for menopause?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2025

Comment

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...

https://connect.mayoclinic.org/comment/873136/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

Hello, @upnorth94 Hydroxyurea is the classic medication for PV. But it’s not for everyone. You mentioned...

https://connect.mayoclinic.org/comment/893496/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Comment

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Comment

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024