Blood Cancers & Disorders Support Group

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Comment

Hello @ksyren, yes, it is really nice to be able to chat with people who are...

https://connect.mayoclinic.org/comment/1205478/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

Comment

Has anyone heard of new approved treatments for dry bone marrow or myelofibrosis - not stem...

https://connect.mayoclinic.org/comment/1049344/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

Comment

Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you. My...

https://connect.mayoclinic.org/comment/1550163/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:44am

Comment

@gajokos I was diagnosed with Myelofibrosis (MF) in June of the year. My mutation is MPL...

https://connect.mayoclinic.org/comment/1494765/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:11am

Comment

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

Comment

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about...

https://connect.mayoclinic.org/comment/132600/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Comment

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Comment

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

@loribmt That was great advice. I hope everyone with the JAK2 mutation reads it twice. As...

https://connect.mayoclinic.org/comment/1442435/

Discussion: Jak2 mutations w/high WBC

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

Comment

Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...

https://connect.mayoclinic.org/comment/1043713/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024