Blood Cancers & Disorders Support Group

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Comment

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

Comment

I get bulletins from Patient Power about drug therapies, and am bookmarking this one that lays...

https://connect.mayoclinic.org/comment/1329826/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Comment

I read that bone marrow transplants are Only for the MPN myelofibrosis I have not heard...

https://connect.mayoclinic.org/comment/57941/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Comment

Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...

https://connect.mayoclinic.org/comment/889987/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Comment

I am new to this site and having some difficulty following threads, but my husband was...

https://connect.mayoclinic.org/comment/1243859/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2025

Comment

@ tinak123 I am 70 YO, and was diagnosed with ET when I was 50. I...

https://connect.mayoclinic.org/comment/1399081/

Discussion: Living with ET

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Comment

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Comment

@1pearl would you mind sharing your doctors name at City of Hope? I’ve been considering going...

https://connect.mayoclinic.org/comment/1420257/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Comment

Sounds exactly like my story without the myelofibrosis. So many results from genetic and bone marrow...

https://connect.mayoclinic.org/comment/1203190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025