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Discussion
Waldenstrom’s Macroglobulinemia Liver size?
Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...
Last active: May 8, 2023
Discussion
Anyone had Plasmapheresis for Waldenstrom's macroglobulinemia?
I have Waldenstrom's macroglobulinemia and read about a treatment for viscous (thick) blood.It's called Plasmapheresis which is essentially the removal, treatment and return of blood...
Last active: Mar 2 3:43pm
Discussion
Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?
Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...
Last active: Apr 19, 2025
Discussion
Waldenstrom's, CLL or MGUS?
Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...
Last active: Nov 2, 2024
Discussion
Waldenström's Macroglobulinemia
Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....
Last active: May 25, 2024
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Last active: Jun 3, 2025
Discussion
Waldenstrom's: Should I take the new medication (rituximab)?
Diagnosed 6 months ago after losing 25 lbs. down to 100 at 5’6”. IGN almost 2000. Extreme fatigue. Went in prednisone and Imbruvica. I’m went...
Last active: Jan 23, 2025
Discussion
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Last active: Jan 6, 2024
Discussion
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
Discussion
Should Waldentrom's Patients Get Flu Shots?
I had a bone marrow biopsy back in February and was diagnosed with Waldenstrom's. I'm still learning about my cancer and wonder if I should...
Last active: Sep 5, 2023