Blood Cancers & Disorders Support Group

Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...

igms slowly going up after two years on ruxience and octigam and brukinsa. dr just ordered venclexta and insurance denied it🪀. any ideas? am i...

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

I have Waldenstrom's macroglobulinemia and read about a treatment for viscous (thick) blood.It's called Plasmapheresis which is essentially the removal, treatment and return of blood...

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....

61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...

Diagnosed 6 months ago after losing 25 lbs. down to 100 at 5’6”. IGN almost 2000. Extreme fatigue. Went in prednisone and Imbruvica. I’m went...

I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...