Blood Cancers & Disorders Support Group

Jakafi has really helped with the itchy skin symptom of PV I suffered with, but I've noticed my weight steadily increasing to where I'm the...

I was diagnosed with CML (chronic myelogenous leukemia) in March 2021. Although I have been taking Sprycel since being diagnosed, my BCR-ABL numbers have plateaued...

I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

I have been taking Jakafi for five years with great symptom relief for PV. However I am starting to get a few symptoms again such...

I am 74 years old, female. Three years ago diagnosed with PV After five phlebotomies I was told my platelets were too high to continue....

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...