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Blood Cancers & Disorders Support Group

Public Support Group
986 total results
Discussion
Medication for JAK2
I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of...
Last active: Jun 26, 2019
Discussion
JAK2 and DNA
Has anyone had a DNA marker test to see when the JAK2 might have appeared? I'm curious about what the "when" and "what" environmental factors...
Last active: Jan 27, 2023
Discussion
Pros and Cons of JAK2 testing
My doctor has given me conflicting opinions on whether or not JAK2 testing would advisable. My platelets have been high normal (394-399) since 2016. This...
Last active: Oct 7, 2023
Discussion
JAK2 detection accuracy
Hello, my 22 year old son had a DVST about five months ago and following with all the testing his blood test showed less than...
Last active: Apr 28 1:02pm
Discussion
Jak2 and Vitamin D3
I read there is a study of affects of Vitamin D3 and the JaK2 mutation. They have found correlation w D3 and bone morrow??? Anybody...
Last active: Mar 12 4:39am
Discussion
JAK2 and Heart Disease
I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...
Last active: Dec 19, 2019
Discussion
JAK2 Mutation - Effects and Questions
Have JAK2 mutation verified twice; one year apart and from different labs. As I understand, it may cause polycythemia vera, essential thrombocytosis, or leukemia. My...
Last active: Jun 19 5:59am
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Last active: Jul 4 10:05am
Discussion
JAK2 negative with high platelets
I have been told that my JAK2 results came back negative, which I think is a good thing, but my platelets continue to run over...
Support Group: Heart & Blood Health
Last active: Aug 18, 2023
Discussion
JAK2 V617F positive, now what?
I have been tested twice and found positive results both times for JAK2 V617F. I see Hematology in December but thought I'd ask this community...
Last active: Dec 18, 2023