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Discussions (11)
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15, 2024
Does anyone have splenic marginal zone lymphoma?
I was just diagnosed with smzl and euggt now the dr said it is a wait and watch.
Last active: Feb 9 12:56pm
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: Dec 3, 2025
Want to connect with others with Splenic B cell Marginal Zone Lymphoma
There are over 80 different subtypes of lymphoma . This is a slow growing lymphoma.I'd like to know and communicate with any patient if possible.
Last active: May 23, 2025
Anyone else have Low Grade B Cell Nodual Marginal Zone Lymphoma
I was diagnosed in December and I am a watch and wait patient. I was wondering if anyone else is also.
Last active: Jun 20, 2023
Is anyone taking Ibrutinib (Imbruvica)?
Was diagnosed with marginal zone lymphoma and I was treated with Rituximab with minimal response. Doctor adviced me to take Ibrutinib.
Last active: Jun 21, 2024
Lymphoma doc at Mayo Rochester
Hi friends, I’m living with Marginal Zone Lymphoma, partial remission after 8 rounds of rituximab. I am heading for a 2nd opinion at Mayo Rochester....
Last active: Jul 14, 2025
Who do I see for porphyria?
Are there any doctors at Mayo Rochester , or in MN, that specialize in Porphyria? I’m lost, as it a rare disease. High urine porphyrins,...
Last active: Dec 2, 2022
Primary cutaneous marginal zone B-cell lymphoma (PCMZL)
Looking to connect with others also diagnosed with PCMZL. This is a rare type of nonHodgkins, B-cell cutaneous lymphoma. This past year, I began an...
Last active: Feb 24 7:13am
lymphoma remission. Lower back pain
I am in remission from Splenic Marginal Zone Lymphoma and had my last maintenance treatment with Rituxan two weeks ago. Since last fall I have...
Last active: Nov 17, 2016
Has anyone had Ritixumab therapy 2xs in a row?
I've have marginal Zone, b cell Lymphoma. I've had 6 hours of immunotherapy 4 times every other day. Then another Bone Marrow Biopsy. Shoes cancer...
Last active: Sep 10, 2025