Primary Cutaneous Marginal Zone Lymphoma (PCMZL)L)
Looking to connect with others also diagnosed with PCMZL. This is a rare type of nonHodgkins, B-cell cutaneous lymphoma. This past year, I began an informal private FB support group called PCMZLers which is small, but growing.
I was diagnosed in 2018 after surgical removal of two odd purple nodules on my arm. My biopsy sample (which was benign, but deemed "atypical") was sent to two different labs for a conclusive diagnosis.
Since then, I have been a wait & watch patient, managing symptoms mostly via my own natural care plan. I am being monitored quarterly by my primary care physician who is a D.O.