Blood Cancers & Disorders Support Group

Awaiting a return message from my chemo after a big spike in my LDH on at my regular blood check this month. All other results...

I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...

I get periodic bulletins via email from Patient Power that track what Big Pharma is researching for MPN patients. Looks like a vaccine approach may...

I have had a diagnoses of ET for 13+ yrs. I started with 1 Hydrea 3X's a week and am now on 500 mg. 3...

I have just recently been diagnosed with JAK 2 positive ET and I am only 48. Coming to terms with the “c” word has been...

Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...

Oncology check-up today. Asked about red, hot palms and soles of feet. It's called palmar-plantar erythrodysesthesia (PPE). Yes, patients with ET notice it, but not...

Are there any members who are not treating their ET diagnosis?

I have ET and am on hydroxyurea 500 ml and aspirin. I have been on it for 2 1/2 years. It has been gradual but...

I was diagnosed with Essential Thrombocythemia a few months ago, and I’m positive for JAK 2. So far, I have a “mild” case (platelets are...

Just wondering with regards medication in 2025 and what is being used to control ET in the modern world? Have done a little research and...

If you of a certain age, and considering having the shingrex vaccine. You might be interested in telling your doctor that the vaccine can drop...

I have been experiencing pain that travels across the top of my left foot. Its a curious location and has become more pronounced, something that...

Hello, I am wondering what the symptoms are of beginning spleen involvement in ET. I was dx'd with ET in 2013 . My Internal Medicine...

Im 64 got diagnosed with ET about 2 years ago based on blood work (Jak2). My hematologist says I’m textbook ET My count is at...

I have been struggling with ET for 18 years now and have found heavy , really heavy exercise helps a lot. I don’t know if...

I have ET and the MLP 10 mutation, i'm 55 years old, my platelets are in the low 700's, just diagnosed last week.. I thought...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

Thoughts on bio identical hormones and ET? I am assuming it’s not safe?