Blood Cancers & Disorders Support Group

Thank you for this resource. I have found substantial information about the treatment plans after diagnosis, criteria for diagnosis but not the protocol for referral...

My father (80 years old) has been diagnosed with leptomeningeal disease which has a very poor outcome. He has been taking Acalabrutinib successfully for the...

Hello Everyone, About a month ago, I posted a few questions for my husband concerning his recent diagnosis of CLL. He is 72 years old....

Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment. After 10 years my...

Is it possible there is a genetic component to this disease? In my family history, my grandmother, my aunt and my mother — and oddly...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold...

Anybody on treatment for CLL

I have CLL and my recent CT scan indicates an enlarged spleen "Spleen: Enlarged, measuring 14.6 cm in length". Is that substantially larger than normal,...

Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...

I am so pleased to have found this group, have read so many posts. I am 81 years old and 1 year ago was dxed...

Hi everyone- I don't know if anyone else after they were first diagnosed noticed that now everywhere you turn, everything you see is cancer this,...

I was diagnosed with CLL in October 2021 at the age of 59. My Dad was also diagnosed with CLL @ 60 years old. His...

Receny diagnosed Nov. with CLL. No treatment recommended 92yrs. What can I eat. Saw somewhere said no dairy...Diabetic diet dairy recommended. Not sure what to...

Husband 84 just diagnosed with CLL, Is this common in older people and what things are done to stop from progressing?? We are new to...

Is there any information about the drug Medformin and its impact on SLL/CLL treatment?

I have Bullous Pemphigoid and have been diagnosed with CLL. I was wondering if that has happened to anyone else.

CLL

If I have smudge cells in my blood and do not have high white cells could that be a consideration for CLL?

Husband diagnosed 3 mos ago with CLL. No treatments at this time, we’re planning a weekend in Vegas to see a couple of shows, we...