Blood Cancers & Disorders Support Group

Hello Everyone, About a month ago, I posted a few questions for my husband concerning his recent diagnosis of CLL. He is 72 years old....

Wonder of this might help those of us dealing with chills and hot flashes due to our CLL. https://www.yahoo.com/news/experimental-pill-cut-hot-flashes-161925642.html

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

Is it possible there is a genetic component to this disease? In my family history, my grandmother, my aunt and my mother — and oddly...

Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment. After 10 years my...

I am wondering what experience, if any, people with CLL have had after receiving HepA/Hep B, Tdap, pneumococcal immunization, and Shingrix immunization. I appreciate any...

My father (80 years old) has been diagnosed with leptomeningeal disease which has a very poor outcome. He has been taking Acalabrutinib successfully for the...

He thinks he's fine. We're in our early 70s. The bvFTD runs in his family. I waited my whole life and married at age 66....

DX of aCLL seems to have completely different symptoms than typical CLL. Just trying to find others who share the same atypical dx that my...

I am so pleased to have found this group, have read so many posts. I am 81 years old and 1 year ago was dxed...

Hi everyone- I don't know if anyone else after they were first diagnosed noticed that now everywhere you turn, everything you see is cancer this,...

Does anybody with CLL take Venetoclax?

I had a colonoscopy & gastroscopy performed recently and as preparation a CBC was done and unbeknown to me a pererhal blood smear. The procedcures...

I have CLL and my recent CT scan indicates an enlarged spleen "Spleen: Enlarged, measuring 14.6 cm in length". Is that substantially larger than normal,...

I just turned 70 and was diagnosed with CLL about 2 years ago. My blood counts have been pretty stable since then, so my hematologist...

I was diagnosed with CLL in October 2021 at the age of 59. My Dad was also diagnosed with CLL @ 60 years old. His...

I had seen a reference in a new study on osteoporosis drugs that precluded participation by anyone with a bone marrow disorder. Now for the...

Any individuals with a CLL diagnosis?Cliff

6 months ago my rheumatologist did some blood work and everything was normal. Now, this month with different dr, my blood test showed elevated white...

I was recently diagnosed and been having a lot symptoms like hot flashes, bone and joint pain and fatigue. WBC are at 26 and lymphocytes...