Blood Cancers & Disorders Support Group

Thank you for this resource. I have found substantial information about the treatment plans after diagnosis, criteria for diagnosis but not the protocol for referral...

Hello Everyone, About a month ago, I posted a few questions for my husband concerning his recent diagnosis of CLL. He is 72 years old....

My father (80 years old) has been diagnosed with leptomeningeal disease which has a very poor outcome. He has been taking Acalabrutinib successfully for the...

I am wondering what experience, if any, people with CLL have had after receiving HepA/Hep B, Tdap, pneumococcal immunization, and Shingrix immunization. I appreciate any...

Is it possible there is a genetic component to this disease? In my family history, my grandmother, my aunt and my mother — and oddly...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

Wonder of this might help those of us dealing with chills and hot flashes due to our CLL. https://www.yahoo.com/news/experimental-pill-cut-hot-flashes-161925642.html

Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment. After 10 years my...

Anybody on treatment for CLL

My doctor discovered smudge cells as a pre-cursor to CLL in Dec. 2015. This spring of 2016, my lyphmocyte count put over the 5000 threshold...

I am in the watch and wait stage and next appointment is in September. I have had 2 sinus infections within a month, night sweats,...

I am so pleased to have found this group, have read so many posts. I am 81 years old and 1 year ago was dxed...

I have CLL and my recent CT scan indicates an enlarged spleen "Spleen: Enlarged, measuring 14.6 cm in length". Is that substantially larger than normal,...

Periodically I get chills that last several hours without any external cause. Hot chocolate or eating sugary food does not help so low blood sugar...

I had a colonoscopy & gastroscopy performed recently and as preparation a CBC was done and unbeknown to me a pererhal blood smear. The procedcures...

Hello! I am writing this on behalf of someone else who is in the beginning stage of CLL. Does anyone have experience with applying for...

Any individuals with a CLL diagnosis?Cliff

Hi everyone- I don't know if anyone else after they were first diagnosed noticed that now everywhere you turn, everything you see is cancer this,...

I was diagnosed with CLL in October 2021 at the age of 59. My Dad was also diagnosed with CLL @ 60 years old. His...

I had seen a reference in a new study on osteoporosis drugs that precluded participation by anyone with a bone marrow disorder. Now for the...