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Discussions (102)
I have smoldering Myeloma. Does anyone have this diagnosis?
Multiple Myeloma- I have smoldering Myeloma. Does anyone have this diagnosis? Does anyone have an abnormal protein in their blood , which is a precursor...
How does chemotherapy affect dementia?
My wife has multiple myeloma cancer and moderate dementia.
Blood cancer for Dori
I mentioned I was diagnosed with blood cancer there's three different kinds waldenstrom macroglobulinemia, lymphoma or multiple myeloma. Out of the three which one would...
Constipation from daily morphine use
I have multiple myeloma and are on daily morphine use, which have led to chronic constipation. Linzess gives me profuse diarrhea even at the lowest...
MM - Lg Kappa free light chain numbers doubled. How high is too high?
Multiple myeloma diagnosis - Lg Kappa free light chain numbers doubled, 4k to 8k. What does this mean and high high is too high?
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Post CAR-T failure, is there hope?
I have had multiple myeloma now for over eight years. I have been through all the usual treatments. I have had treatment failure after Stem...
Does Mayo Clinic offer financial favor?
My wife has multiple myeloma. She has been treated by a Thai hospital in Bangkok, Thailand for 10 years. Now I cannot afford the expensive...
How do I make an appointment with Oncology?
My Nephrologist and Urologist both strongly suspect I have a blood cancer (possible multiple myeloma) and want me to seen ASAP by a oncologist at...
Beta Region in SPEP Test & Beta 2-microglobulin - Same Thing?
In an SPEP or UPEP test for multiple myeloma, is what is described as the "beta region" the same as the measurement of beta 2-microglobulin?...
Waiting on chemo drug approval: How long does this take?
I was diagnosed with multiple myeloma this December 9 24. I was supposed to start chemo January 6 but I am still waiting on drug...
High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
Myeloma returned after 9 years of remission: Comments welcome
Multiple myeloma returning after 9 years of remission IGG Lambda numbers are high 1827 M spike 1.9 Kappa lambda ratio in normal range creatine .90...
Annual American Society of Hematology mtg this weekend!
The ASH conference is the most watched conference for those of us with blood disorders. As a multiple myeloma patient I’m thrilled to be part...
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
The SMM and MM Mayo zooms are great. Are there Leukemia zooms?
I have IgA Kappa Light Chain SMM, and a friend has leukemia. She isn't on meds so likely early, but could use more info and...
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Diagnosed: MGUS
Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...
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