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Public Support Group 999 total results
Discussions (95)
MM - Lg Kappa free light chain numbers doubled. How high is too high?
Multiple myeloma diagnosis - Lg Kappa free light chain numbers doubled, 4k to 8k. What does this mean and high high is too high?
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Does Mayo Clinic offer financial favor?
My wife has multiple myeloma. She has been treated by a Thai hospital in Bangkok, Thailand for 10 years. Now I cannot afford the expensive...
High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
Waiting on chemo drug approval: How long does this take?
I was diagnosed with multiple myeloma this December 9 24. I was supposed to start chemo January 6 but I am still waiting on drug...
How do I make an appointment with Oncology?
My Nephrologist and Urologist both strongly suspect I have a blood cancer (possible multiple myeloma) and want me to seen ASAP by a oncologist at...
Beta Region in SPEP Test & Beta 2-microglobulin - Same Thing?
In an SPEP or UPEP test for multiple myeloma, is what is described as the "beta region" the same as the measurement of beta 2-microglobulin?...
The SMM and MM Mayo zooms are great. Are there Leukemia zooms?
I have IgA Kappa Light Chain SMM, and a friend has leukemia. She isn't on meds so likely early, but could use more info and...
Annual American Society of Hematology mtg this weekend!
The ASH conference is the most watched conference for those of us with blood disorders. As a multiple myeloma patient I’m thrilled to be part...
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Cryoglobulinemia Vasculitis Question
I've been diagnosed with Cryo Vasc..(for short). Along with Sjogrens and Reynauds, both oc which are laying low right now..im on Methotrexate and tapering off...
Diagnosed: MGUS
Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...
Is There A Link Between Sedentary Lifestyle and MGUS/SMM/MM?
I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...
Anyone with myeloma experience a change in their sense of smell?
Hi,I have just been diagnosed with Multiple Myeloma but have not started any treatment yet.The timing isn't great with Ucare going away, just adds to...
Low anion gap, worried
Not sure where else to post this. I had blood work done and the anion gap came back low at 3. Everything else in the...
Looking for a good dentist who knows about MM in Cleveland Ohio!
Hi I have Multiple Myeloma and need to find a dentist familiar with MM. I'm on the west side of Cleveland Ohio. I was told...
Kappa/lambda results normal but ratio high
My kappa/lambda results were normal but the ratio was high. I have had several issues for over a year now and no one can tell...
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