Blood Cancers & Disorders Support Group

I developed ET-CALR in my early 50s, diagnosed at 60, on hydroxyurea and aspirin at 64, now 70. HU has kept platelets stable in 400s...

I have had ET for more than 25 years, many of which had been thought to be reactionary thrombosis. Corroborated by a bone marrow biopsy...

Is ET, Polycythemia, and Jax2 considered a blood cancer?

I felt confused and freaked out after the diagnosis. It seemed no one knew much about ET. I didn't know that hydroxyurea was chemo in...

Hi - I am about to get a bone marrow biopsy because my platelets are 965. I understand that I am likely to start hydroxyurea...

I've been on HU since March 2025 (5 days of 500 mg/day each week) and my platelets have dropped from 1200 to 314, so I'm...

I found a research study that connected the ET Jak2 with endometrial cancer, and wonder if that happened to you? I was diagnosed with endometrial...

I was diagnosed with ET due to JAK2 mutation in November 2025. Taking HU and baby ASA. Now contemplating knee replacement surgery and would like...

Has anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)? Looking for fatigue experiences.

I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...

I've had ET-CALR for 17 years. Doc first assumed my high platelets were stress-related. I was doing elder care for my very difficult mother, trying...

I have been following Blood Cancers for a while now, and have yet to see anyone post MPL gene mutation. I am 69 yo female...

Hello, I am wondering if anyone has experienced this- I have ET JAK2 and have been taking Hydroxyurea for 2 months 1000mg per day to...

Diagnosed with ET 9/25. On hydroxyurea and 81 mg aspirin. Had an iron infusion in mid September. Now ferritin is above 550 and iron high....

I had has ET for 3 years and on hydroxyurea 500mg 5 times a week has kept things pretty stable allowing for platelets to be...

Any one managing Thrombocythemia Jak2 and hemochromatosis (cys282Tyr)? I’m new to both. I started Hydrea a few weeks ago. Any insights to share? Thanks!

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...

I have been on Hydroxyurea for 1 1/2. I’m on 500 once a day. My platelets are tracking at 405k. I am borderline anemia. But...

Hello, all. I was diagnosed with ET three years ago when I was only 45 years old. Odd, I know. Anyway, I’m on 2000 mg...

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?