Blood Cancers & Disorders Support Group

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?

So I shared a bit on here not too long ago about being misdiagnosed with type 1 von Willebrand‘s disease in my early teens, and...

I've had ET-CALR for 17 years. Doc first assumed my high platelets were stress-related. I was doing elder care for my very difficult mother, trying...

Is anyone involved in any clinical trials for ET, specifically for CALR? I am unable to tolerate Hydroxyurea, and am currently only taking aspirin. I...

I was just diagnosed with ET. I am 61 years old. My platelet count is 640k right now.Doctor suggested I take a baby aspirin everyday...

Hi - I am about to get a bone marrow biopsy because my platelets are 965. I understand that I am likely to start hydroxyurea...

I've been on HU since March 2025 (5 days of 500 mg/day each week) and my platelets have dropped from 1200 to 314, so I'm...

I have been following Blood Cancers for a while now, and have yet to see anyone post MPL gene mutation. I am 69 yo female...

I had has ET for 3 years and on hydroxyurea 500mg 5 times a week has kept things pretty stable allowing for platelets to be...

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...

Anyone talked to their hemo/oncologist about cannabis? I am having increased anxiety and insomnia, and 5 mg of THC before bed in gummy form once...

I have been on Hydroxyurea for 1 1/2. I’m on 500 once a day. My platelets are tracking at 405k. I am borderline anemia. But...

I am in the midst of waiting for results of my bone marrow biopsy. At the same time the Dr ordered LOTS of gene mutation...

I’m 28 and have not been formally diagnosed with Essential Thrombocythemia, but my platelet counts have been consistently high since I was at least 16...

Hi there, has anybody developed high fever taking hydroxy? Just started treatment for ET

I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....

I was diagnosed in March 2025 with JAK2, TET2 and ASXL1 mutations after a bone marrow biopsy. I have had very high platelets but Hydroxyurea...

I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...

I've been wondering if there are any stats on people who have lived the longest with ET and taking Hydrea? As I hit the 30-year...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...