Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
363 total results
Discussions (49)
Anyone else have EXTREME brain fog with dasatinib or imatinib?
My husband was just diagnosed in December with CML. He has also had Polycythemia Vera for 25 years, managed well with medication, most recently Jakafi...
Last active: Jul 15 1:48pm
Defeated today
I'm feeling defeated today after working so hard at to remain positive. 3 straight days of feeling dizzy, exhausted and terrified. Reading posts in this...
Last active: Jun 16, 2023
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Last active: Sep 7 4:05am
Can I take Hydroxyurea in a dab of applesauce?
Recently diagnosed with polycythemia Vera (PV). Clinic has not changed, but doctor has. Doctor #1 did a phlebotomy treatment. I am also on Eliquis due...
Last active: Jul 26 1:29pm
Am I alone with so many maladies?
20 some odd years ago I was diagnosed with Diffused large-cell lymphoma and through the strength and support of my family and friends (and amazing...
Last active: Jan 2 1:58pm
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Last active: Mar 19, 2024
Jak2 Detected, Healthy otherwise, What's next?
Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...
Last active: Sep 3 1:53am
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Last active: Sep 29, 2024
Anyone else find the side effects of Hydrea 500MG frightening?
I was diagnosed with having a blood cancer that looks and acts a lot like Polycythemia Vera (PV) about 6 years ago. I’ve been rolling...
Last active: Jun 4 7:00pm