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Public Support Group 350 total results
Discussions (47)
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Defeated today
I'm feeling defeated today after working so hard at to remain positive. 3 straight days of feeling dizzy, exhausted and terrified. Reading posts in this...
Am I alone with so many maladies?
20 some odd years ago I was diagnosed with Diffused large-cell lymphoma and through the strength and support of my family and friends (and amazing...
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
https://connect.mayoclinic.org/discussion/polycythaemia-ruba-vera-jak2-mutation-link-to-sleep-apnea/
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
Jak2 Detected, Healthy otherwise, What's next?
Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Anyone else find the side effects of Hydrea 500MG frightening?
I was diagnosed with having a blood cancer that looks and acts a lot like Polycythemia Vera (PV) about 6 years ago. I’ve been rolling...
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