Connect
Public Support Group 2,078 total results
Discussions (110)
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
MGUS, pain and weight loss
My husband was diagnosed with MGUS in late 2024 and has lab work done every six months. My concern is the pain he has in...
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
MGUS and Non-Hematologic Malignancy
Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
MGUS progression and excess weight
During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Newly diagnosed with MGUS and so anxious
I am in the first few days of finding out I have MGUS obviously I have googled it and feel very anxious as I have...
MGUS FLC Ratio decreasing: Concerned
I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
I am newly Diagnosed with MGUS.
I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
MGUS associated with Type I Cryoglobulinemia
I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...
Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...
Connect