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Blood Cancers & Disorders Support Group

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2,001 total results
Discussions (107)
MGUS and Non-Hematologic Malignancy
Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...
Last active: 3 days ago
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
Last active: Jun 9, 2023
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Last active: May 6, 2023
Diagnosed last year with MGUS.
Wondering what dose and brand of curcumin others are using, as well as any specific contraindications and side effects? Thank you!
Last active: Nov 9, 2023
MGUS FLC Ratio concern
Hi, I am 25M, diagnosed with MGUS at age 22 in Dec 2021. Since then my FLC ratio (IGG Lambda K/L = 0.49) has gone...
Last active: Jul 15, 2024
MGUS FLC Ratio decreasing
I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....
Last active: Jan 12, 2024
MGUS progression and excess weight
During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...
Last active: Feb 12 4:34pm
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: Apr 25 1:56pm
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18, 2024
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29, 2024
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Mar 3 1:51pm
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Last active: Nov 28, 2023
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Last active: Aug 6, 2024
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
Newly diagnosed with MGUS and so anxious
I am in the first few days of finding out I have MGUS obviously I have googled it and feel very anxious as I have...
Last active: Mar 13 5:27pm
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Last active: May 15 7:18pm
Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...
Last active: Jun 29 9:11pm
People diagnosed with MGUS under 45
I was diagnosed with MGUS and iron deficient anemia at 36. I am not diabetic or prediabetic and have no autoimmune or other serious underlining...
Last active: Jun 9 6:06pm
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: Jun 25 2:12pm
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
Last active: Nov 29, 2023