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Public Support Group 1,545 total results
Discussions (81)
MGUS at young age
Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Diagnosed with MGUS and CHIP with M spike
For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
What’s the science on diet and MGUS/SMM?
Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Effect of caffeine and alcohol on progression of MGUS
I am newly diagnosed. I don’t drink alcohol and caffeine but do indulge on occasion. Has anyone heard how this might affect MGUS? Thanks!
Does anyone have neuropathy related to MGUS?
I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
MGUS to myeloma: How can it be detected sooner?
My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...
Anyone have MGUS and being treated for osteoporosis?
Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks
Question to ask about MGUS Diagnosis
Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...
I am newly Diagnosed with MGUS.
I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...
IgM MGUS and newly infected with Covid
Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....
MGUS associated with Type I Cryoglobulinemia
I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...
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