Blood Cancers & Disorders Support Group

Hi, I am 25M, diagnosed with MGUS at age 22 in Dec 2021. Since then my FLC ratio (IGG Lambda K/L = 0.49) has gone...

Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...

During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...

Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...

I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....

I am in the first few days of finding out I have MGUS obviously I have googled it and feel very anxious as I have...

Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...

MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...

This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...

Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...

For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...

Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...

As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...

I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...

I've just been diagnosed with MGUS, and the pain from my osteoarthritis in my left knee has been getting worse. I'm fairly sure these are...

Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...

Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...