Blood Cancers & Disorders Support Group

I was diagnosed with both MGUS ( had a Pet scan and a bone marrow biopsy) and Rheumatoid Arthritis in 2022. I am currently on...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...

Hello good people of the unknown world of MGUS. So I had my 3 month checkup with bloodwork. My bloodwork appointment was 9:15 and the...

Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...

What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...

Hello. I have not been diagnosed with MGUS, but I'm very confused about the criteria. I have been under the care of a hematologist for...

I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....

Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...

Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...

Hi, I was diagnosed with MGUS in 2024. I have done some research and have found that a BMI in the normal range is suggested...

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...

For the last couple of years hematologist thought I had polycythemia. Today I was just diagnosed with MGSU and Chip.. Anybody else here diagnosed with...

MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...

Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...

This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...

Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...

Wondering if anybody with MGUS has had an iron infusion. My family doctor has ordered and my haematologist approved, but I’m wondering if anybody has...

Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...

Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks