Blood Cancers & Disorders Support Group

Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks

Husband was diagnosed in 2019. It has been characterized as smoldering MGUS by his hematologist. This past week he got his first infection with Covid....

Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...

I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...

Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in...

I would like to know if there is anyone out there who can give me information on Cryo. I would be very interested in talking...

Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end...

I was in a ski accident in Dec 2022 and fractured my pelvis. It is now July and it shows no sign of healing or...

My wife attended hospital for 2years having bloods taken checking her protein (MGUS) on her last visit her protein was over 80,took a lumbar puncture...

As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...

I understand that there has been at least one study suggesting that females who remain seated much of the day most days over the long...

Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...

Hello all. I am 24 years old, male. I was diagnosed with MGUS in December 2021. Since then, My M protein has gone from 0.3...

I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next...

I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my...

Hello,I am hoping someone can help better understand my labs and symptoms.IgA Kappa with .88 m-spikeIgA 1000Blood in urineLow RBCHigh number in the Betta regionLower...

Hello Everyone!I do hope that this finds you as well as can be expected today.Some of you are dealing with very serious situations!I wish you...

i Have gotten desperate enough to try to get an appointment at Mayo in minnasota for mgus. anyone out there that is also been diagnosed...

Anyone has MGUS are you having joint pain?