Blood Cancers & Disorders Support Group

During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...

Hello good people of the unknown world of MGUS. So I had my 3 month checkup with bloodwork. My bloodwork appointment was 9:15 and the...

Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...

Hi, I was diagnosed with MGUS in 2024. I have done some research and have found that a BMI in the normal range is suggested...

Hello. I have not been diagnosed with MGUS, but I'm very confused about the criteria. I have been under the care of a hematologist for...

What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...

Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...

Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...

I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....

Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...

Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...

I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to...

Wondering if anybody with MGUS has had an iron infusion. My family doctor has ordered and my haematologist approved, but I’m wondering if anybody has...

I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does...

MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...

Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...

This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...

Hi Group, I am having a lot of anxiety about my MGUS progressing. Does anyone else deal with this on a regular basis? Could you...

Hi, anyone in this group have MGUS and being treated for osteoporosis? Thanks