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Discussions (117)
MGUS and GLP-1’s
Hi, I was diagnosed with MGUS in 2024. I have done some research and have found that a BMI in the normal range is suggested...
Last active: Oct 15 8:01am
MGUS at young age
Hello all. I am a 36 year old female and was just diagnosed with IgM kappa MGUS. There is very little information online about MGUS...
Last active: Sep 28, 2023
MGUS and understanding results
Hi, iv been diagnosed with either MGUS or Smouldering myeloma. I havnt had a biopsy yet but was told I don’t need one yet. How...
Last active: May 6, 2024
MGUS Diagnosis Criteria
Hello. I have not been diagnosed with MGUS, but I'm very confused about the criteria. I have been under the care of a hematologist for...
Last active: Mar 28 9:32am
MGUS Bloodwork Frequency
What is the recommendation for MGUS bloodwork frequency when there has been no progression for 3 years since diagnosis? 83 year-old hubby's hematologist has been...
Last active: Apr 24 10:36pm
MGUS, pain and weight loss
My husband was diagnosed with MGUS in late 2024 and has lab work done every six months. My concern is the pain he has in...
Last active: Sep 4 8:18am
MGUS plus Rheumatoid Arthritis
I was diagnosed with both MGUS ( had a Pet scan and a bone marrow biopsy) and Rheumatoid Arthritis in 2022. I am currently on...
Last active: Sep 26 9:42am
3 Month MGUS Checkup
Hello good people of the unknown world of MGUS. So I had my 3 month checkup with bloodwork. My bloodwork appointment was 9:15 and the...
Last active: Sep 17 12:02pm
MGUS progression and excess weight
During the six months or so that I've been reading and occasionally contributing to these conversations, I've seen numerous threads relating to slowing MGUS progression...
Last active: Feb 12 4:34pm
MGUS with Polycythemia Vera (PV)
Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...
Last active: May 6, 2023
MGUS and restless leg syndrome
Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...
Last active: Jun 9, 2023
Always run down with MGUS
Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...
Last active: Apr 25 1:56pm
MGUS and Non-Hematologic Malignancy
Just read a study published in 2024 that showed “Increased incidence of non-hematologic malignancy in patients with monoclonal gammopathy of undetermined significance.” It also states...
Last active: Jul 28 3:49pm
Light Chain MGUS Progression
Has anyone else been diagnosed with Lambda LCMGUS? My FLC was 54 at diagnosis now 59 ratio is 02. How long since your diagnosis and...
Last active: Aug 18, 2024
Can MGUS be cured by CRISPR?
MGUS is a genetic mutation.CRISPR can be used to find and remove MGUS cells.Removing MGUS proteins from my blood stream should stop the progression of...
Last active: Oct 29, 2024
Stopping Myeloma at the MGUS Stage
This has been a recurring theme of mine since dx in 2005 with only a 0.4 Mspike which has now become still more or less...
Last active: Mar 3 1:51pm
Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does...
Last active: Oct 22 12:27pm
MGUS FLC Ratio decreasing: Concerned
I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....
Last active: Jan 12, 2024
Is there anything to help stop or slow progression of MGUS?
I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a...
Last active: Oct 19 11:26pm
Anyone else have Symptomatic MGUS?
Hi, I just joined. Had MGUS diagnosis since august 2021, however I had elevated paraproteins for years beforehand (docs then just refused to refer me...
Last active: Nov 28, 2023