Blood Cancers & Disorders Support Group

Does anyone on this site have pre-fibrotic pm or know where I can get some good information. I am still a week away from a...

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I have round the clock burping, mild nausea, insomnia. Started HU Nov 2025. I have been on Zepbound since summer 2025. But now experience sour,...

Hello, I am newly diagnosed (2 weeks) with Essential Thrombocythemia JAK2 and have been on 1000mg a day of Hydroxyurea for 2 weeks. I have...

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...

I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

I have been on HU for Essential Thrombocythemia since the first part of November with good results. My platelets have fallen from the mid 600s...

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?

Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...

Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...

I was diagnosed with Essential Thrombocythemia w/JAK2 4 years ago. My platelets continue to climb and I’ve been on Eliquis and baby aspirin for over...

I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...

I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....

I am a 72 year old male and was diagnosed with Essential Thrombocythemia three years ago. After many tries at different doses my Oncologist settled...

I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...

I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...

I’ve had this disease for 23 years now,have taken Anagrelide,hydroxides,but now I’m injecting with Peg-interferon 90mcg weekly and it’s keeping my platelets stable,over the last...