Blood Cancers & Disorders Support Group

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I have been on HU for Essential Thrombocythemia since the first part of November with good results. My platelets have fallen from the mid 600s...

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

I was diagnosed with Essential Thrombocythemia in December 2022. My platelets have been kept under control with 500 mgs of Hydroxyurea 3 x a week....

Hello. I am new to this group and looking to connect with fellow members who are dealing with MPD. I have Essential Thrombocythemia as well...

I have essential thrombocythemia. I use liquid coffee creamer that contains erythritol. Could this be increasing my platelet count?

Bone marrow consistent with a myeloproliferative neoplasm and the differential includes essential thrombocythemia and primary myelofibrosis. MPL mutation testing is positive. No sustainable iron in...

I was diagnosed with Essential Thrombocythemia last November and am on Hydroxyurea 1500mg daily in an effort to reduce my platelet count, still in 9000s....

I am a 72 year old male and was diagnosed with Essential Thrombocythemia three years ago. After many tries at different doses my Oncologist settled...

I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...

I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...

I’ve had this disease for 23 years now,have taken Anagrelide,hydroxides,but now I’m injecting with Peg-interferon 90mcg weekly and it’s keeping my platelets stable,over the last...

After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...

I’m 28 and have not been formally diagnosed with Essential Thrombocythemia, but my platelet counts have been consistently high since I was at least 16...

I'm 57 (58 in February 2026) and was diagnosed with essential thrombocythemia about six months ago, after genetic testing it turns out I have a...

We all know when we’re sick, right? Well, I’m sick, but I can’t get a diagnosis of my illness. My symptoms have been going on...

My mum has had essential thrombocythamia which has now progressed to myelofibrosis. Following a period where she's been very ill she has had the most...