Blood Cancers & Disorders Support Group

I have ET and the MLP 10 mutation, i'm 55 years old, my platelets are in the low 700's, just diagnosed last week.. I thought...

What causes fainting, for those of us who have ET? I am concerned and am looking for clarification, in order to better understand what's behind...

I recently came upon a fairly recent article about the monoclonal antibody INCA44989 treatment for JAK2 ET. It supposedly has a roughly 70% positive response...

I was diagnosed with ET & MPL 2 months ago, platelet count of 850 and the doctor started me on HU 500mg, 3 pills a...

Thoughts on bio identical hormones and ET? I am assuming it’s not safe?

As I am reading, it seems that there is a wide range of acceptable platelet numbers. I have been dealing with ET SINCE 2019. The...

Just opening this thread to track this bump in the road in case it helps somebody in the same boat: Have had a floppy mitral...

I had a very disturbing event happened about a week ago. My Vision suddenly changed – – the room suddenly looked like it was divided...

I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists...

I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...

Is anyone on Pegasys Interferon Alpha -A instead of Hydroxyurea? My doctor switched me after a little over a year on the HU because along...

The blood tests to check liver functions were normal in August, but in January, they have greatly increased over the normal range. Has anyone else...

Hi. My wife Becky was diagnosed with ET about a year ago. She has been on various doses of HU over the year and is...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

I take 500 mg of Hydroxyurea 4 times a week for Jak2 ET and I also have severe Osteoporosis. My Oncologist is recommending "Prolia" injections...

I have recently been prescribed teriparatide as an adjunct to Prolia for the treatment of osteoporosis. I have had ET for 5 years and am...

Hello, I am a 67 year old woman who was diagnosed with ET 30 years ago through a bone marrow biopsy. I have had no...

I have ET, 69 years old, experiencing fatigue and headaches. First hematologist recommended Hydroxyurea for counts hovering around 500. Second MPN specialist prescribed 2 low-dose...

Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...

Is anyone involved in any clinical trials for ET, specifically for CALR? I am unable to tolerate Hydroxyurea, and am currently only taking aspirin. I...