Blood Cancers & Disorders Support Group

Thoughts on bio identical hormones and ET? I am assuming it’s not safe?

As I am reading, it seems that there is a wide range of acceptable platelet numbers. I have been dealing with ET SINCE 2019. The...

I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists...

Is anyone on Pegasys Interferon Alpha -A instead of Hydroxyurea? My doctor switched me after a little over a year on the HU because along...

I was diagnosed with ET with Jak2 mutation about eight months ago and I am on hydroxyurea. Some days I am so itchy I feel...

Any one managing Thrombocythemia Jak2 and hemochromatosis (cys282Tyr)? I’m new to both. I started Hydrea a few weeks ago. Any insights to share? Thanks!

Has anyone with ET (JAK2+ or CALR) had SBRT (radiotherapy)? Looking for fatigue experiences.

Hello, all. I was diagnosed with ET three years ago when I was only 45 years old. Odd, I know. Anyway, I’m on 2000 mg...

Hi. My wife Becky was diagnosed with ET about a year ago. She has been on various doses of HU over the year and is...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

The blood tests to check liver functions were normal in August, but in January, they have greatly increased over the normal range. Has anyone else...

I take 500 mg of Hydroxyurea 4 times a week for Jak2 ET and I also have severe Osteoporosis. My Oncologist is recommending "Prolia" injections...

Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...

I have recently been prescribed teriparatide as an adjunct to Prolia for the treatment of osteoporosis. I have had ET for 5 years and am...

Hello, I am a 67 year old woman who was diagnosed with ET 30 years ago through a bone marrow biopsy. I have had no...

I have ET, 69 years old, experiencing fatigue and headaches. First hematologist recommended Hydroxyurea for counts hovering around 500. Second MPN specialist prescribed 2 low-dose...

I developed ET-CALR in my early 50s, diagnosed at 60, on hydroxyurea and aspirin at 64, now 70. HU has kept platelets stable in 400s...

I have had ET for more than 25 years, many of which had been thought to be reactionary thrombosis. Corroborated by a bone marrow biopsy...

Is ET, Polycythemia, and Jax2 considered a blood cancer?

Anyone talked to their hemo/oncologist about cannabis? I am having increased anxiety and insomnia, and 5 mg of THC before bed in gummy form once...