Blood Cancers & Disorders Support Group

Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...

As my husband's advocate, I am trying to understand several processes (the learning curve is steep!) How do I find the Standard of Care for...

I have many symptoms of amyloidosis. I had a PyP scan an of heart. Result was equivical- meaning not not neg, but not pos either....

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...

Since my husband has been on Hemodialysis for 3 years and now with the diagnosis of AL Amyloidosis they have not been able to pull...

I was diagnosed with Al Amyloidosis in 2021. I don't have much of an appetite since then. I would appreciate any ideas to gain about...

I have MM and Amyloidosis. I’m on Velkade and Revlimid. I am on week 4 of chemo and feel terrible. So weak I can hardly...

Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...

Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...

Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...

Hello All, I have several questions and hope this is the right sub forum. I had a bone marrow biopsy done 5 years ago for...