Blood Cancers & Disorders Support Group

CAEL 101 seems to be the only effective treatment for reduction of amyloid fibrils of the heart in Al Amyloidosis. I’m reading conflicting information about...

I have shortness of breath, neuropathy, enlarged tongue, carpal tunnel syndrome, bruising under eyes. Negative fat pad biopsy

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

Diagnosed with AL amyloidosis through blood tests- 77 years old - is a kidney biopsy necessary? I chose not to do it but am re-thinking....

I have many symptoms of amyloidosis. I had a PyP scan an of heart. Result was equivical- meaning not not neg, but not pos either....

Just diagnosed with wild type ATTR at 67. I have been prescribed Attruby . My only symptom is tingling in my fingers so I’m hoping...

I am an 83 year old female and will be starting treatment of dexamethasone and Daratumumba along with Benadryl and Tylenol I am wondering about...

Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...

I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...

My husband, 55, was recently diagnosed with both AL light chain (lambda) amyloidosis and acquired von Willebrand Syndrome (AvWS). He is finishing cycle 5 of...

My doctor is waiting on confirmation from the Mayo Clinic for AL Amyloidosis.

Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...

I have MM and Amyloidosis. I’m on Velkade and Revlimid. I am on week 4 of chemo and feel terrible. So weak I can hardly...

I was diagnosed with Al Amyloidosis in 2021. I don't have much of an appetite since then. I would appreciate any ideas to gain about...

Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...

Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...

Hello All, I have several questions and hope this is the right sub forum. I had a bone marrow biopsy done 5 years ago for...