Blood Cancers & Disorders Support Group

I have shortness of breath, neuropathy, enlarged tongue, carpal tunnel syndrome, bruising under eyes. Negative fat pad biopsy

CAEL 101 seems to be the only effective treatment for reduction of amyloid fibrils of the heart in Al Amyloidosis. I’m reading conflicting information about...

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

I have many symptoms of amyloidosis. I had a PyP scan an of heart. Result was equivical- meaning not not neg, but not pos either....

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...

Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...

I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...

Just diagnosed with wild type ATTR at 67. I have been prescribed Attruby . My only symptom is tingling in my fingers so I’m hoping...

My husband, 55, was recently diagnosed with both AL light chain (lambda) amyloidosis and acquired von Willebrand Syndrome (AvWS). He is finishing cycle 5 of...

Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...

I was diagnosed with Al Amyloidosis in 2021. I don't have much of an appetite since then. I would appreciate any ideas to gain about...

I have MM and Amyloidosis. I’m on Velkade and Revlimid. I am on week 4 of chemo and feel terrible. So weak I can hardly...

Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...

Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...

Hello All, I have several questions and hope this is the right sub forum. I had a bone marrow biopsy done 5 years ago for...