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Blood Cancers & Disorders Support Group

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302 total results
Discussions (30)
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12, 2024
Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
I have recently been diagnosed with multiple myeloma/ amyloidosis. Just wondering if anyone has this and would love to know more about what others are...
Last active: Jan 16, 2024
Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?
Just diagnosed with wild type ATTR at 67. I have been prescribed Attruby . My only symptom is tingling in my fingers so I’m hoping...
Last active: May 18 4:28pm
Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?
My husband, 55, was recently diagnosed with both AL light chain (lambda) amyloidosis and acquired von Willebrand Syndrome (AvWS). He is finishing cycle 5 of...
Last active: Dec 5, 2024
Ideas for adding weight on? Healthy
I was diagnosed with Al Amyloidosis in 2021. I don't have much of an appetite since then. I would appreciate any ideas to gain about...
Last active: Oct 3, 2024
Chemo side effects
I have MM and Amyloidosis. I’m on Velkade and Revlimid. I am on week 4 of chemo and feel terrible. So weak I can hardly...
Last active: Oct 8, 2018
Articles about New Research in Multiple Myeloma
Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...
Last active: Apr 28, 2023
Amyloidisis of the mouth and myeloma
Does anyone have Amyloidisis in their mouth?? What treatments have helped get rid of the purple sores.. Also have myeloma which is better after trans...
Last active: Feb 6, 2023
Free light chain ratio in MGUS
Hi, Iam in the U.K. and was diagnosed with IGM Lambda MGUS 15 months ago. During that time my Lambda flc has risen from 27.5...
Last active: Sep 25, 2024
Possible Al Amylodiois
Hello All, I have several questions and hope this is the right sub forum. I had a bone marrow biopsy done 5 years ago for...
Last active: Jul 23, 2023