Blood Cancers & Disorders Support Group

I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of...

Has anyone had a DNA marker test to see when the JAK2 might have appeared? I'm curious about what the "when" and "what" environmental factors...

My doctor has given me conflicting opinions on whether or not JAK2 testing would advisable. My platelets have been high normal (394-399) since 2016. This...

Hello, my 22 year old son had a DVST about five months ago and following with all the testing his blood test showed less than...

I read there is a study of affects of Vitamin D3 and the JaK2 mutation. They have found correlation w D3 and bone morrow??? Anybody...

I have MDS/MPN Overlap. On the MPN side I have ET and MF. I recently developed a heart problem and had an ablation at the...

Have JAK2 mutation verified twice; one year apart and from different labs. As I understand, it may cause polycythemia vera, essential thrombocytosis, or leukemia. My...

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I have been told that my JAK2 results came back negative, which I think is a good thing, but my platelets continue to run over...

I have been tested twice and found positive results both times for JAK2 V617F. I see Hematology in December but thought I'd ask this community...

I have ET JAK2 55 female normal labs except platelets slightly elevate I took baby aspirin for two weeks platelets still high then my hematologists...

Has anyone been living with,ET, jac2 mutation

recently had moderna vaccine. platelet count went down ; then spiked up after a month. Does vaccine affect/how does it affect those with mpn's Will...

This is incredibly long...please forgive me for it. I'm just feeling very lost. I am 39, female. Since at least 2016, I have had confusing...

My husband was diagnosed June 2019, he had been hospitalized in 2017 and went into septic shock only to realize he had a hole in...

Does anyone have both of these incurable diseases? How do you manage therapies for both? I'm an active 83 year old female.

My understanding from reading is 95% of PV'ers are Jak2 positive, so I'm in the 5% with Jak2 neg. Is that a good thing? I...

Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...

Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...